Hi Bonnie :lol:
I know how lonely and frustrating this disease can make us feel. It is so hard to have to come to terms with the loss of who we once were. But, we must redefine ourselves in order to make the best of who we are now.
No, you may not be able to hike the Sierras for days on end, but you may be able to hike a local recreation area for a couple of hours, take a rest and hike some more. Your hiking may require a few different things to sustain you (like sunscreen, hats, protective clothing and you may have to take some medications before you short hike. But, you can still hike one day!
What I am trying to say is that Lupus is not the end of your life! It is, however, the beginning of a different lifestyle. All of us have had to make lifestyle changes so that we could continue to live a somewhat normal life. We've had to change our hobbies, change our friends, change our outlooks and change our goals. It is hard, at first, but it can be done and we are all here to help you in any way that we can.
Please do not give up! I know this is a lot to deal with, but don't ever give up. I hope that we can help you to deal with this disease, that is what we are here for. Come to us whenever you feel a need and someone will be here for you
Peace and Blessings
Look For The Good and Praise It!