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Thread: Hey Teens tell us about you

  1. #31
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    1. Name:
    Kate
    2. Age/D.O.B:
    19; 6-7-89
    3. Boyfriend/Girlfriend's Name:
    Sam
    4.Your favorite colour:
    orange
    5.Your favorite meal to cook:
    Uhm, mac and cheese? Can't cook, hah.
    6.Your favorite meal to eat out:
    pad thai
    7.Your Favorite drink:
    Sobe Energy
    8.Your favourite movie:
    Hot Fuzz
    9.Your favorite song:
    10.Your favorite Actor/Actress:
    Robert Downey Jr.
    11. How old were you when you were diagnosed?
    I was 17 years old.
    12. What are you taking now?
    Methotrexate (5 2.5mg tabs weekly), Plaquenil (300 mg daily), Folic Acid (2 mg daily), Motrin (300 mg in the morning, and then 300 mg as needed).
    13. Does it help?
    Very much so, yes. Maybe interested in a different NSAID at some point.
    14. What have you taken?
    I started off on the Plaquenil and Aleve but that didn't work, so my doctors added Methotrexate and switched me to Motrin for pain and inflammation management.
    15. Do you want kids?
    I don't know anymore.
    16. Does anyone else in your family have LUPUS?
    My mom has both Rheumatoid Arthritis and Lupus, as well as several other chronic illnesses.
    17. Any brothers or sisters?
    One younger sister, 17.
    18. Nieces or nephews?
    Hah. No.
    19. What state do you live in?
    For school, Pennsylvania. For family, California. For friends and my love, Massachusetts.
    20. Where would you live if you had the chance?
    Probably MA. Or Ireland. Wherever Sam is.
    21. What is your lucky number?
    7
    22. Are you in school?
    Yes.
    23. What kind? ( High School, college, etc.)
    I am class of 2011 at Bryn Mawr College.

    24. Anything else that you want to tell us!!
    I come to this community with the hope that I can find some like-minded young people dealing with lupus. Ultimately, I would like to find someone at my college who also has lupus that I could talk to. I just don't know how to go about finding them.
    I'm friendly and I like helping people, so if anyone wants to talk I'm here to listen.
    I just really need someone that isn't 50+ to relate to what I'm going through.

  2. #32
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    Hi you, Cuttlefish...

    I am almost an oldie...47. I just wanted to welcome you with warm open arms here.

    Feel welcomed to chat up in any forum too...

    Hugs..
    Love,
    Oluwa
    I have Lupus. So *^#@! what.

  3. #33
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi Kate,

    I'm Rob, I'm one of the moderators here. I was diagnosed with SLE when I was 36. I'm 40 now. I wanted to welcome you, and let you know that the best place to meet people here is in the forum called "Laurie's Lounge", and you can also introduce yourself in the intro area as well. This teen area is a good idea, but it doesn't recieve much traffic. We've got plenty of members here that are close to your age, and in college as well.

    We're pretty informal here, so feel free to just jump in and join the group. There are some great people here, and they are very understanding. The only people who really can understand what it's like to live with Lupus are other people with the disease. So, make yourself at home, and don't be afraid to explore the site and join in where you want to.

    Rob

    P.S. Oh yeah, I think Robert Downey Jr. is a heck of a good actor too. And Thai food rules.

  4. #34
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    Thank you both for your kind responses!
    More than anything, I just want to talk to people who understand what I'm dealing with.
    My mom is the only one who I can really talk to and, while she's amazing and awesome and everything, it probably wouldn't hurt to branch out a bit.

    I'll post in Laurie's Lounge next.
    Thanks again!

  5. #35
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Kate,

    I know what you mean, my mother has Lupus too, and for the longest time she was the only person I ever spoke to, or even knew who had Lupus. She needed a break, and I needed to talk to other people and stop isolating myself. Anyway, I'll see you in the Lounge!

    Rob

  6. #36
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    1. Name: Sandra
    2. Age/D.O.B: 20 years old
    3. Boyfriend/Girlfriend's Name: Giorgio

    -=-=-=- Favorites! -=-=-=-=-

    4.Your favorite colour: Black
    5.Your favorite meal to cook: Rice with sate
    6.Your favorite meal to eat out: Indonesian food!
    7.Your Favorite drink: Tea with honey
    8.Your favourite movie: Stardust
    9.Your favorite song: With Trees
    10.Your favorite Actor/Actress: Helena Bonham Carter

    -=-=-=- lupus Related -=--=-=-

    11. How old were you when you were diagnosed? 19
    12. What are you taking now? Nothing
    13. Does it help?
    14. What have you taken?
    15. Do you want kids? Very much... Would love to be pregnant
    16. Does anyone else in your family have LUPUS? Grandma, aunt and mother.

    -=-=-=- Random! -=-=-=-
    17. Any brothers or sisters? 2 brothers
    18. Neices or nephews? a lot!
    19. What state do you live in? i live in Holland, overseas.
    20. Where would you live if you had the chance? Norway, in the mountains.
    21. What is your lucky number? 3
    22. Are you in school? Finished!!
    23. What kind? Multimedia

    24. Anything else that you want to tell us:

    Hope i'll find some answers and perhaps friends on this forum! I could use some support from others....

  7. #37
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Welcome Sann,

    My name is Rob, and I'm a moderator here. I just wanted to let you know that you are welcome to post anywhere on this site. This teen area doesn't receive much traffic, so any questions, comments, or just plain visiting you want to do will get the best results in the forum called "Lauri's Lounge", as well as the other forums near the top of the page. In other words, make yourself at home, and don't be afraid to explore! I'm glad you joined us.

    Rob

  8. #38
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    -=-=-=- YOU-=-=-=-
    1. Name: Kathleen (Kat)
    2. Age/D.O.B: 19 10/15/89
    3. Boyfriend/Girlfriend's Name: Single
    -=-=-=- Favorites! -=-=-=-=-
    4.Your favorite colour: Green
    5.Your favorite meal to cook: My mom's whipped potatoes
    6.Your favorite meal to eat out: Chicken parm
    7.Your Favorite drink: Rasp. Iced tea
    8.Your favourite movie: The Grinch
    9.Your favorite song: Right now prolly dreamer-chris brown, crush-david archulleta, so what-pink
    10.Your favorite Actor/Actress: Sandra Bullock

    -=-=-=- lupus Related -=--=-=-
    11. How old were you when you were diagnosed? 18
    12. What are you taking now? Prednisone and plaquenil
    13. Does it help? Yes
    14. What have you taken? Naproxin. prednisone, and plaquenil
    15. Do you want kids? of course
    16. Does anyone else in your family have LUPUS? my grandpas third cousin

    -=-=-=- Random! -=-=-=-
    17. Any brothers or sisters? 1 younger brother
    18. Neices or nephews? none
    19. What state do you live in? MA but right now NH (at college)
    20. Where would you live if you had the chance? Ma or upstate NY
    21. What is your lucky number? 13
    22. Are you in school? yup
    23. What kind? ( High School, college, etc.) college

    24. Anything else that you want to tell us!! Stay positive and keep your heads up....it gets easier eventually...and please dont hesitate to contact me if you want to talk...i understand what your going through!

  9. #39
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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hi Kat;
    I've read your posts in some of the other forums here. Welcome to our family and I hope that other teens will pop in to acquaint themselves with you and share experiences with you.

    Peace and Blessings
    Saysusie
    Look For The Good and Praise It!

  10. #40
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    -=-=-=- YOU-=-=-=-
    1. Name: Acey
    2. Age/D.O.B: 20, March 19th 88'
    3. Boyfriend/Girlfriend's Name: Chase [girl]
    -=-=-=- Favorites! -=-=-=-=-
    4.Your favorite colour: Blue
    5.Your favorite meal to cook: Stir fry or Sushi
    6.Your favorite meal to eat out: Sushi
    7.Your Favorite drink: Pumpkin' Spice Latte'
    8.Your favourite movie: not sure...
    9.Your favorite song: It changes a lot
    10.Your favorite Actor/Actress: none

    -=-=-=- lupus Related -=--=-=-
    11. How old were you when you were diagnosed? 14
    12. What are you taking now? cellcept. Prednisone. stomach pill. quinipril. depression pill. prenatal. percocets.
    13. Does it help? ...no, just the percocets. But i dont have joint pain so i guess the prednisone is helping too
    14. What have you taken? Allll those, Chroiquin gives me headaches
    15. Do you want kids? I do...
    16. Does anyone else in your family have LUPUS? nooope just lucky me

    -=-=-=- Random! -=-=-=-
    17. Any brothers or sisters? a older brother
    18. Neices or nephews? nope
    19. What state do you live in? Washington
    20. Where would you live if you had the chance? Canada or Washington
    21. What is your lucky number? 3
    22. Are you in school? finished college
    23. What kind? Tech. College

    24. Anything else that you want to tell us!!
    lupus.. sucks..

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