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Thread: Raising Lupus Awareness on Facebook

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  1. #1
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    Default Raising Lupus Awareness on Facebook

    Dear All,

    I'm sure many of you have heard of ''facebook''--a very successful online, free venue for friends and people with a common interest to discuss issues in groups, etc. Probably one of the better groups that involves lupus patients is called ''Understanding Invisible Illnesses''.

    I was wondering if you are interested in us starting a group on facebook to raise awareness about lupus worldwide.

    If you haven't already, try checking out the forum at www.facebook.com (Registration only takes a few minutes).

    All the best,
    Dina
    I was diagnosed with lupus nephritis, confirmed by bloodwork and kidney biopsy, and mild lupus cerebritis (epileptiform) in June 2004.
    Medications: CellCept, Prednisone; Phenytoin; Lipitor; Zestril, Norvasc; Aranesp (darbepoetin alfa).

  2. #2
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    Yes i have definitely heard of facebook.
    And i think its a fantastic idea. Do we have a group on facebook yet?
    I intend to live forever, so far so good

  3. #3
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    Ok, I have created another group on facebook, called "Lupus awareness"

    Facebook is a very powerfull tool with over 30 million users.

    To access it and join up, there after one could invite a number of other people from u're email or on facebook, register on the site and click on groups, then search for "lupus awareness".

    This will get better awarenes for lupus, the number of users registering on the site is astronomical.
    I intend to live forever, so far so good

  4. #4
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    Actually, there are 43 groups on Facebook that relate to "lupus awareness." Sounds like there are a lot of folks hoping to raise the awareness of this disease!
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Yes this is a good thing actually, the more people we can get involved the better
    I intend to live forever, so far so good

  6. #6
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    Default Another great site is LinkedIn

    It's a business social networking site -- not much on Lupus there yet -- so a new group there would be really visible. And been seen by more movers / shakers

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