Well, you are most certainly NOT ALONE! There are people here, on these forums, from all over the world and we all want to let you know that you are not alone.
Lupus, as you said, is a very misunderstood disease and almost all of us have been called lazy by ignorant people who do not want to understand the disease. Our problem is that many of us do not look sick. Here is a story written by a person with Lupus that many of us have shared with each other and with others. It is called, "But You Don't Look Sick" and it gives a very good explanation about how we feel:
Please know that we are here to help you, to provide answers to your questions, to provide information, to give you support and comfort and to make sure that you know that there is always someone who understands and who knows how you feel. I am happy that you joined our family!
Peace and Blessings