Thanks for all of your support! This forum is so much help to me.
Racinie - I will be praying for you. Let us know how the biopsy goes.
My rheumatologist seemed really worried that i might have class 4 or 5 nephritis, so he had me see my nephrologist asap. I went in, thinking we were going to finalize plans for a biopsy and probably end up going on cytoxan/ high dose prednisone. Instead, he looked over my tests results and decided that he thought the cellcept WAS working. he seemed very optimistic, and gave me 4 out of 5 that it would get me out of kidney trouble. Although my kidneys were still spilling a lot of protein, i guess it wasn't as bad? Anyway, I don't have plans for a biopsy anymore, at least not in the near future. I've never been so relieved/greatful for my health as I am now. I still don't know if my kidneys are alright for sure, but at least they're working ok. Thanks for the prayers, i know it's made a difference.
Hi Racine :lol:
What good news!! I am also happy that you will not need a biopsy now and that your kidney function seems to be improving. I LOVE to hear good news!!
I will breath a sigh of relief with you :lol:
Saysusie.....i have six of the symptoms you mentioned.......protein in my urine as well.....i am in so much pain it is unreal.....but since my ana went way down.......I can not seem to find a doctor who will listen......can you give me any advise....or any ideas or written proof i can give to my doctor...i also have a cyst on my kidney the size of my thumb (probably not related) I am desparate and miserable can you please help me???
Is your doctor saying that you do not have Lupus because your ANA titer went down? And, therefore, is he saying that since you do not have Lupus, that you do not have problems with your kidney function? Otherwise, I cannot see how your low ANA alone would have anything to do with determining your kidney function. Now, in the case of nephrotic syndrome, there are several tests used to diagnose the condition, not just the ANA. Those tests are: Urinalysis, serum albumin, total protein, cholesterol, urine total protein, antinuclear antibody (ANA) test, hepatitis B test, hepatitis C test, complement levels
Performing tests on samples of your blood and urine are the first line of defense in detecting kidney problems and minimizing damage. Tests of these types can show how well the kidneys are removing excess fluids and waste. When a structural problem is suspected, a variety of imaging tests can be used to evaluate the kidney. A sample of kidney tissue, a biopsy, is also helpful in diagnosing the specific cause of the problem.
There are several tests commonly used to help a doctor to recognize if you have kidney or urinary disease. As I mentioned in my previous post, a blood sample can be analyzed for creatinine (and estimated glomerular filtration rate (EGFR)) and blood urea nitrogen (BUN). The level of these waste products in the blood increases as your kidney filtration declines. Abnormal results are usually the first sign that kidney disease is present. A urine sample is typically also examined and analyzed (urinalysis) as part of routine screening. This set of tests looks for indicators of kidney and urinary disease such as red blood cells, white blood cells (WBCs or leukocytes), and protein in the urine.
If you have six of the signs listed above, you should insist that your doctor order the screening tests. Perhaps print these posts and take them with you to your doctor to advise him/her that you have six of the signs of Kidney involvement as well as protein in your urine. If he refuses to run the tests, ask for another doctor who will take you seriously!
If, after the screening tests, you have been diagnosed with a kidney disease, your doctor should thenl order laboratory tests to help monitor your kidney function. Blood levels of BUN and creatinine are measured from time to time to see if the kidney disease is getting worse. The amount of calcium and phosphate in the blood and the balance of serum and urine electrolytes can also be measured, as these are often affected by kidney disease. Hemoglobin, measured as part of a complete blood count (CBC), may be measured (the kidneys make a hormone, erythropoietin, that controls red blood cell production). Urine total protein can be used to test the effects of treatment in diabetes and nephrotic syndrome. Parathyroid hormone, which controls calcium levels, is often increased in kidney disease and is often checked to see if enough calcium and vitamin D are being taken to prevent bone damage.
Go fight for your right to be heard, listened to, taken seriously AND TREATED!
Please let us know how it goes
Peace and Blessings