Hello ,I too have been unable to work for over a year.I tell you , people just do not understand what life is like with SLE.
My name is Malisa and I would be happy to let you vent on me and I will do my part as well. It's certainly hard when everything about your life has changed. I'm not going to sugar coat any of it. When I could no longer work and go do all of my normal activities ,well it really sucked for me. I try to find things of interest that I can do at home but most of the time I am to tired.I haved learned to do only as much as I feel like doing.If you feel like sleeping all day then that's what you should do. As a matter of fact I am really sleepy so good night .