Hi my fello lupus friends,
i'm new to this forum, but i've had lupus for about 8 years now. SEems like i always have something that doctors go " hmmm" to. lol well recently i had really severe kidney pain, which i just got yesterday again, i went to the ER as well thinking it was some type of kidney stone, they thought so also, and they did a ultra sound of my kidney and found nothing, but a trail of blood through the tube of the kidney but no sign of any stone, now they don't know what to think, they said they have heard of cases of lupus patients getting kidney pain (spasms) and then blood fellowing the pain but they don't know much about it! hmmm that's nice! Just wondering if any of you get this and what you have been told. Right after the pain yesterday i had blood in my urine again. Nice to meet all of you too... :lol:
The most common kidney involvement with Lupus is protein leakage in the urine and generally does not cause discomfort or pain. When the kidney is inflamed, your blood pressure may rise and when the kidney is more severly damaged, the filtering process may become impaired causing toxic elements to become present in the blood. This can lead to wheight loss, nausea and general malaise.
I could find no information about pain, bleeding and spasms in the kidney when related to lupus only!
Has your doctor tested you for lupus nephritis? This is a condition complicated by Lupus in which the immune system produces antibodies against your body's components. Complexes of these antibodies and complements accumulate in the kidneys and results in an inflammatory response. This condition can cause a nephrotic syndrome (excessive protein excretion) and my progress to renal failure. There is also an accumulation of nitrogenous waste products in the blood stream which can lead to urinary abnormalities, including protein and blood in the urine.
Ask your doctor about this symptom and the tests. Let us know what the results are.
Best of Luck
Thank you for your response, i will see him in a week, so i will mention it. HOpefully it's nothing too serious.... i'll keep you updated thanks again.
I have the exact same thing
Just so you know... I have the kidney pain as well, and periodically severe pain with blood in the urine.
They can not figure mine out either. Let me know if your docs come up with anything... and I'll let you know if mine do.
Ok, thanks a lot. i'm glad i'm not alone. let me know if you find out anything.
FYI - I also have kidney pain, but I have Lupus Nephritis. The weird things is, just like Saysusie said, I did not have kidney pain when I was going downhill with kidney function before I was diagnosed with lupus. But, my kidney pain seems to be getting worse and worse, even thought my kidney function has gotten better. Maybe the meds? That seems weird to me, so I'll ask the Nephrologist on Monday. But my original Rheumy, before I moved and changed Rheumy's, said it's normal for people with Nephritis to not have any kidney pain. Maybe it's one of those SLE things, like everything else, where we all have different responses?
Anyway, good luck!
I am havin alot of the same symptoms. Recently got out of the hopital after 4 day of iv fluids. I had a infection or colitis bout. Since then I have on and off kidney pain. I explain like someone kicking you in the back. Feels like a spasm. So far my kidney functions are OK. I do have bouts of blood in my urine after the pain. I will let you know if anything is found out. I have no stone and no kidney infection.
I can't relate to the feeling kicked in the back, mine's more like dull pain that lasts for a couple of hours at a time. I'm going to the kidney specialist tomorrow, so I'll ask about it, but does anybody else have this kind of pain?
Yes I do have that exact pain. It is exactly how I described it to my doctor.
Keep me updated... I'll be seeing a nephrologist soon.... I'll keep you posted as well!
Ok mmichelle, I saw the nephrologist and have Type 4 Nephritis, the worst kind, but I had kind of figured that out already. He spent 2 hours with me and consulted with his 3 other peers to give me the final diagnosis. Anyhow, I'm staying on my Cellcept/Prednisone tx, probably for 8 more months - a total of a year, as this tx has an 80% remission rate.
Anyhow, the only thing I don't agree with him about is the kidney pain! He says it's not lupus- it's musculoskeletal, and wants to refer to it a as "pain in the flanks", not kidney pain. But I don't have other swelling/joint pain, and I SWEAR it is dull, kidney pain, and usually occurs in the morning if I didn't get up to pee in the middle of the night! He says, "Most people with nephritis don't have kidney pain", but doesn't "most"mean that there still are some? I agreed with him on everything but this.
Any news on your nephritis?