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Thread: I go something like this.....

  1. #1221
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    Is it alive or can I wear it as a coat?
    I have Lupus. So *^#@! what.

  2. #1222
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    Default hi

    Its alive,so dont open the case I started this ...sorry was going bit mad. How you feeling now? Your mind n body easing?x
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  3. #1223
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    why would you even want to wear it as a coat?

    I cant stop smoking today i dont know whats up with me lol

    ISDM
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

  4. #1224
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    ISDM...could it be the steroids?

    Fur coat...have the tail sweeping around my neck like a scarf...

    L.
    O.
    I have Lupus. So *^#@! what.

  5. #1225
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    Amanda...Mad? Mad? If you are going mad, can I come with? Oh, I am already there... L., O.
    I have Lupus. So *^#@! what.

  6. #1226
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    Yes it is ive just worked out im eating more and what is usually had after food?! yup!

    im sure the tail would be dragging on the floor

    ISDM
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

  7. #1227
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    O,

    Things do get better, its sounds like today is one of those days for you. And you are entitled to it. Dont be down about it though, alot of the stuff you mentioned happens to me too, and Ive been going through it since i was 17. I know sometimes this disease can be so emotionally debilitating but we have to stay strong for ourselves and each other, especially on these days. And for the record I think that you are very creative. You dont even realize how natural it is for you, thats a god given gift..... and baby... that aint going nowhere!!! lol. Cheer up hon, things will get better. I promise.... Hugs!!!

    Love Chriss
    Live, love, and most importantly be grateful!!

  8. #1228
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    Hi Chriss...

    Isn't amazing in a not so good way..that first post was written over 2 years ago..and well, I haven't come a long way baby. For the most part I am still the same..even worse.

    Thank you about the creativity compliment. I guess I don't realize it is still there because I don't feel it inside. I feel like a chalkboard that has been erased.

    My thoughts and how to get out of the hole is better than 2 years ago. I've learn to change and adapt...times I struggle, can't believe the real. I fight and then it wins..I cave in and I..well, adapt.

    Thank you for your kind words...today is better than yesterday, more better than the day before. Clearer head...the pain is returning my 'norm'....

    Another day...and so far it is alright. I like it.

    Keep well.
    Love,
    Oluwa
    I have Lupus. So *^#@! what.

  9. #1229
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    Every once in while I come back to this thread that I began 7 years ago... It is like a history book of my life. Times it help me when I've been lonely after Bola died. Thinking about my life, afraid to forget, so I come back every once in to read what I shared, we all shared..the days in our life with our family.

    Thank you for letting me share my pain, my love....and thank you for sharing yours with me. I wonder how all of you are doing who shared this thread with me..too many names to list but none ever forgotten. I hope you are all well in spirit and have found ways for your body to cope with this thing we call IT.

    Head hugs with love...O.
    Last edited by Oluwa; 05-24-2014 at 07:01 PM.
    I have Lupus. So *^#@! what.

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