I have the rash quite often. I can control it with topical steriods but as soon as I stop them, it comes back quick. I try to avoid the sun as much as possible but that is hard to do with a 2 year old that wants to go out and play.
Yes, I think I hate the rash more than anything. Course my only other symptoms are hair loss, pain and somtimes dizzy spells. I don't have severe symptoms like some of our friends on here. If I did, maybe I would say the rash would be the least of my worries. But I do hate it and the way it makes me feel when I have to see it everyday.
I think my rash does affect my emotions is the way that when it is bad, I get depressed and when it starts to diminish I get a little encouraged, but then that quickly fades when it returns. It is a constant up and down. I think it does get me depressed though.
I'm availble to talk if you ever need someone. Remember everyone on here knows what this is like. You will not be alone here!