View Poll Results: Do you have problems with Lupus based discrimination:

Voters
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  • Rarely or Never

    4 40.00%
  • Every few years

    2 20.00%
  • Every few months

    0 0%
  • Every few weeks

    1 10.00%
  • Almost daily

    3 30.00%
Results 1 to 10 of 10

Thread: Discrimination

  1. #1
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    Default Discrimination

    utenutter wrote:
    yeah i still work full time, i work as a printer. lupus is starting to affect my work situation as i run a process where we use intense uv light to cure our coatings over the print and i started getting majour breakouts of the rash on my face when i run this process, i curretntly have a letter from my doctor saying i cant run it but they seem as they still want me to run, they really don't understand where i am coming from.
    shane

    As I write I am bedridden with a classic lupus 'flare'. Here for 3 days now, or is it 4. Headache, fatigue, shaking hands, pain, depression. The usual.
    I've been getting worse over the last 3 weeks, and I've had a few days off sick already.

    This morning I emailed the "boss" (I'm a contractor actually) to say I wouldnt be in today (2nd day). Email reply was: "We need to discuss the terms of your contract."

    Oh yes here we go again.

    Ok so I call him up, and politely express my dissapointment at his disability discrimination (etc, etc), that I'm not in any condition to discuss anything with him, except that I would like an apology.

    Him: "Umm, no. At least I want to give you an apology face to face".

    Me: "You cant apologise over the phone? But you've offended me via email, how come you cant even apologise via email?".

    Him: "I like to do these things face to face".

    Methinks: Yeah, right. Sure pal. Sounds like a condition to your apology. We'll I guess I've just extinguished my only obligation to resolve the matter myself before dragging him off the the Equal Opportunity Commission. My formal complaint will be emailed overnight. Of course the justice is only token - the EOC does not award damages and the financial penalties are very light ($250-$2500) compare with what this will cost me.

    I spent the rest of this afternoon looking for my next contract - disability discrimination is usually always fatal to a contract. I rang up an agent at 530pm and he'll be calling me tomorrow morning for me to decide which position I'd like like. At the moment my skills are currently in high demand. So I dont have to put up with people like this (at the moment, that is).

    But I really despise these cowardly scum who take my illness into account in making decisions about "our contract" . Its bad enough my having this condition. I dont need these people to make my life hell. Its already hell.

    Nuff said for now. I'll keep you all posted.

  2. #2
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    Default

    i don't know if i would call mine decrimination, mine is they just don,t listen!

    yesterday went to dermotolgist tried to explain to him i get flare up from a process i do at work,no ,would not listen though i was saying work caused my lupus to start,so i am trying to tel him it causes flares and i did not get through to him, so i ask can he write a letter saying that any increased amount of uv light can cause problems with with lupus!

    today i go to work,tell them what the dermo said and i asked if there is another job somewhere else more better for me, and again he would not listen and started going on about how the machine can have a few mods and all is good( there mods are pretty bodgie) but he won't listen that i can't run the uv.

    i think i will have this battle for a while

    shane

  3. #3
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    Default

    Shane,

    My uncle has a print shop with all the original printers in it from waaay back when he first opened up like 40 years ago. It's all the old timey equipment. Needless to say, he doesn't get very much business but it makes him happy.

  4. #4
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    Default

    As a teacher, I am fearful of mentioning my Lupus, though I know that morally and practically, I must mention it. I have extensive experience, excellent credentials and my kid's state scores are marvelous (95% on average, passing. RARE!) yet it is SO difficult to land a job. This is in Houston, where they are begging for teachers. Sigh......

  5. #5
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    Default Discrimination - Update

    Well, the inevitable happened.

    The contract was terminated a few days after my post above. I landed a new contract 10 days later. The issue is headed for a fight in the Equal Opportunity Tribunal.

    They will probably settle out of court.

  6. #6
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    Default

    Quote Originally Posted by utenutter
    i don't know if i would call mine decrimination, mine is they just don,t listen!
    ...
    i think i will have this battle for a while
    shane
    I dont think I'd let a Dermatologist treat my Lupus. You should be seeing an immunologist. Even a plain old GP would be a better choice than a person who specialises in an area that is not related to the base cause of the illness.

    And find one that already understands Lupus. If they dont listen, dont waste any more time with them - they're idiots - find another one. If you dont take control of the management of your own condition, you will suffer at the hands of ignorance and incompetence.

  7. #7
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    Default Re: Discrimination - Update

    Quote Originally Posted by bunyip
    Well, the inevitable happened.

    The contract was terminated a few days after my post above. I landed a new contract 10 days later. The issue is headed for a fight in the Equal Opportunity Tribunal.

    They will probably settle out of court.
    Glad to hear you have a new contract. good luck.

    What do you do for a living?

  8. #8
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    Default Re: Discrimination - Update

    Quote Originally Posted by tash-lee
    What do you do for a living?
    I'm a Consulting IT Engineer. I contract via 3rd parties to fix or build computer software. Contracts can last from 6 weeks to several years. Just depends.

  9. #9
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    Default

    hey glad u got a new contract.....

    I know where u coming from tho...
    I am was in WA for a couple years by the way but living in the uk at the moment...

    as the big economic down turn deepens here I decided the other day I am going to close my little company because to many poms are taking the pi$$
    (I do Print, Design, Vinyl Cut Stickers and IT support)
    I thought I will just get a little driving job on the buses or trucks and then do my stickers as a hobby for some pocket money....

    Now I have applied for various jobs but I keep getting turned down for silly reasons I know it's because of the Lupus but they won't admit that....

    The just come up with such transparent dumb reasons that it is starting to do my head in......
    The worse the bad times are the more we appreciate the good things in life..

  10. #10
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    Default

    hehe only now seen how old the post is...
    a well I am sure that a fresh outlook on the subject wont harm anyone.... :lol:
    The worse the bad times are the more we appreciate the good things in life..

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