The L Zone: The Lupus Community’s Advocate
Hasanati D. Nutall, Lupus Advocate & CEO
The L Zone: The Lupus Community's Advocate, promotes Lupus and other chronic illness awareness.
:!: Mission: Protect and advance the legal, human and service rights of people with disabilities. Removing barriers, providing support and education, advocating for individuals with disabilities and policy change.
:!: Goal: Educate, support, and advocate for people who have disabilities, their families, and other circles of support. To enlist the involvement and interest to elevate awareness of Lupus to a prominent place on the nation’s healthcare agenda and to stimulate action to address treatment, medications, research and education.
:!: Vision: That people with chronic illnesses and other disabilities, with their families and circles of support, are able to live a life of freedom, responsibility, and belonging.
:!: That people with chronic illnesses:
■ Receive education about their disease
■ Learn how to live a life of contentment with their illness
■ Realize that they have the same freedom to pursue their
individual goals in life as those that don't suffer with a chronic illness
■ Access to other Lupus Survivors
■ Access to all areas of living with a chronic illness
:!: A call to action: Lupus strikes young women, especially African American, Native American, Hispanic and Asian women. Lupus is a significant public health issue that requires national attention and action now. It is essential that the general public increases their investments in medical research on Lupus that will lead to develop a cure.
:!: Target audience:
■ The general public, leaders and decision-makers in the community
■ Members of Congress and State legislators
■ Representatives of major federal and state agencies
■ National medical societies
■ Lupus patients and their families
■ National women’s health and civic organizations
■ Patient advocates
Objective of advocacy efforts:
■ Increase federal funding for Lupus and medical research
■ Improve public awareness of Lupus
■ Expand services for all people affected by the disease-Educate government officials and the general public about Lupus and its health impact
■ Obtain enactment of legislation that preserves or enhances government programs that benefit people with Lupus, including but not limited to, passage of a strong Patients’ Bill of Rights and prescription drug benefit for Lupus patients.
It’s going to take bold and innovative work to find answers for this centuries-old yet mysterious disease. Lupus research faces serious limitations that threaten to slow the pursuit of promising new leads, delay the application of hard won scientific insights to improving patient care, and impede efforts to test promising new drugs.
Lupus is a widespread disease, & awareness of the disease lags behind many other illnesses.
A cure for Lupus is within reach-WITH: Research, education, advocacy, communication, & proper healthcare...
:B-fly: Hasanati, a writer, speaker, Lupus survivor and advocate who focuses on inspiring, enriching and motivating the lives of others through being ‘purpose driven.’ Hasanati is the founder of, The L Zone: The Lupus Community’s Advocate. She created this organization to promote Lupus and other chronic illness awareness. She is a Lupus Survivor, who was diagnosed in 2000, and from that point, she began her mission to lobby for all people who suffer from Lupus and related illnesses. It’s her life’s goal to enlist family and friends to join in on this important campaign to increase federal support for Lupus research and awareness. Her mission is to: protect and advance the legal, human service rights of people with disabilities. Removing barriers, providing support and education, advocating for individuals and policy change. Her goal is to: educate, support, advocate and enlist the involvement and interest to elevate awareness of Lupus to a prominent place on the nations healthcare agenda and to stimulate action to address treatment, medications, research and education. Her vision is to: advise people with chronic illnesses, along with their families and circles of support, that they have the right to live a life of freedom, responsibility, and belonging. Her vision also encompasses distributing information about Lupus, advising patients how to live a life of contentment with their illness and providing access to other Lupus survivors. Her target audience is: Lupus patients, and other related illnesses, representatives of major federal and state agencies, national medical societies, the general public, leader’s and decision-makers in the community. Her objective for her advocacy efforts are: to increase federal funding for Lupus-related medical research, improve public awareness of Lupus, expand services for all people affected by the disease, educate government officials and the general public about the health impact of Lupus on the community, and obtain enactment of legislation that preserves or enhances government programs that benefit people with Lupus.
Hasanati Nutall, The L Zone: The Lupus Community's Advocate