hi everyone,
i got diagnosed in march this year...i had long, thick hair too but not anymore! my hair was falling off like crazy...i told my rheumy and he said that it's normal...the prednisone was to blame, i guess!! anyway, i just couldn't stand seeing all my long hair everywhere so i decided to cut it short so i don't see as much hair around the house...and it did help!! and for me, the less prednisone i take, the less hair comes off! but if you can, just cut your hair short...it makes it seem like you're losing less hair because it's short!! hope it gets better for all of you who are suffering from hair loss...take care!