Hi, I joined this site today while I was browsing the internet in my continued search for...well, anything. Hints, clues, facts, comfort.
I'm 18 years old, an active musician and photographer in my senior year looking forward to my college plans on the horizon.
For the past couple years I've been plagued by a variety of symptoms that come and go, but only originally went to the doctor to complain of chest pain. I've had numerous tests and been to a few specialists to rule out heart and lung problems. The only things definitely found and diagnosed in the search are mild exercise-induced asthma and Raynaud's syndrome. The rest of my symptoms were wrote off as due to stress (which may have made sense a while ago, but my life and attitude as of last year has grown extremely calm) or being a teenager. The first doctor I went to advised me to seek counseling in order to "lower" this "stress", though the only thing she tested me for was iron anemia.
Last week I finally saw a rheumatologist about Raynaud's after my latest regular doctor told me she had no clue and I should look for second opinions. He seemed to know what he was talking about and had an idea of what it could be but didn't want to say anything until the bloodwork came back. My next appointment isn't until February 27th, and I'm extremely anxious and scared...scared of the diagnosis and scared that there won't be a diagnosis and I'll be back to square one.
My mother and I both began researching separately in December when I started to feel worse and we both came up with Lupus. It seemed (by his questions and list of bloodwork) that the rheumatologist was considering this as well.
I'm not sure what I'm looking for here, perhaps just anyone who can give me advice to ease to anxiety or even just to drop me an e-mail and help me confirm suspicions or suggest ways to deal with the situation until I can see my rheumatologist again.
It all just seems rather nebulous to me, but I'm tired of not being able to keep up with my peers, or even to physically keep up with my mentality.
Thanks for your time.
The worst part is not knowing.