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Thread: MS and or CNS LUPUS?

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    Question MS and or CNS LUPUS?

    Hi everyone, it's been a while i've been on the boards. I hope everyone is doing well. I was wondering if I could possibly talk to someone who also has MS or CNS lupus. As I'm going to get tested for these and I'm really scared, I'd like to know what to expect, what to ask?
    Diagnosed in 2010 with SLE, recurring pericarditis, pericardial and pleural effusions. Fibromyalgia, Avascular Necrosis on both knees, IBS, Gastroparesis, migraines, DVT's, Pulmoray Emboli. Arthritis, pinched nerves and bulging disk all on the neck. Hyperthyroid issues. Neuropthy, anemia and insomnia "taking it one day at a time, what more can I do"

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    Well, I have neurological issues, but they haven't decided to put a name to it. Basically they'd just rather treat the symptoms. So good luck, either way, your life will change, but as Lupies, we adjust and adapt.
    Hugs and Good Thoughts.

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    Hi Nonna, how are you?

    Would you mind sharing with me what symptoms and how are they treating it? I tell you for whatever reason I'm scared to death of this, I wasn't this scared when I found out I have lupus. This is literally driving me crazy! I've also been having anxiety and panic attacks.
    Diagnosed in 2010 with SLE, recurring pericarditis, pericardial and pleural effusions. Fibromyalgia, Avascular Necrosis on both knees, IBS, Gastroparesis, migraines, DVT's, Pulmoray Emboli. Arthritis, pinched nerves and bulging disk all on the neck. Hyperthyroid issues. Neuropthy, anemia and insomnia "taking it one day at a time, what more can I do"

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    hi chikititalinda,

    many of us do at some time find out that our mental state has been effected by lupus.
    and the worry is only natural ...
    we fear it will degenerate.

    I have been to many different specialists.
    I am currently seeking help from a psychologist and a psychiatrist
    I have previously seen brain specialists ...
    and had all sorts of tests and probes done.

    unfortunately for me ...
    no-one has been able to find anything abnormal
    or treatable ....
    so life goes on unassisted
    When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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    I have balance issues and fall a lot. I also have spasms that come close to seizures. Today I found out that the vessels in my brain are having problems. As usual everything is treatable, no worries. You need to take everything one step at a time. Don't borrow worries. Wait and see what comes, then go from there.

    I've learned this over many years. Try and have patience and above all go with the flow.
    Hugs and Good Thoughts.

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    Thank you Nonna, I'm sorry you are having these issues and hope it goes away you don't need anything else either. I go tomorrow to see an opthoneurologist (sp?)
    and tuesday I get the results from the MRI, I do tend to worry but you are right, I have to slow down. I'll deal with whatever comes up, when it comes up.
    Diagnosed in 2010 with SLE, recurring pericarditis, pericardial and pleural effusions. Fibromyalgia, Avascular Necrosis on both knees, IBS, Gastroparesis, migraines, DVT's, Pulmoray Emboli. Arthritis, pinched nerves and bulging disk all on the neck. Hyperthyroid issues. Neuropthy, anemia and insomnia "taking it one day at a time, what more can I do"

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    Saysusie (05-19-2015)

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    let us know how it went with your appointments and how you are doing.

    peace and blessings
    namaste
    saysusie
    Look For The Good and Praise It!

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