Since often the diagnosis of lupus is used more for research purposes than treatment, it's almost a added 'bonus' and not necessary. However, some docs seem reluctant to provide some kinds of treatment for the disease without an official diagnosis, which can take years. Frustrating. My rheumatologist was 99% certain of SLE so began treating me accordingly, calling it 'connective tissue disease'. It took a trip to Mayo Clinic for the official diagnosis (4 or 5 of the 11 criteria) and more unfolding all the time. However, when they read my medical chart going back many years, they said I've probably had some kind of autoimmune disease for much of my adult life. I just KNEW there was something wrong, but if you don't know what questions to ask, and your doctor doesn't know what to look for, you'd just in the dark. I'm glad you've taken an active role in your own care Pjay. You'll be all the better for it. Keep us posted on how you progress, and wel come to our "Family!"
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."