First of all welcome to the site. There are a lot of good folks that come in here and with a vast wealth of information. My name is Kathy. I have SLE, Lupus and have had it for some 44 years or so according to my Rheumatologist. It sounds like you are going through a lot of what I went through before I finally got diagnosed with Lupus. I am serious starting in my early mid 20's I started having severe joint pain and severe headaches and boy I would pass out from the sun and did so on numerous occassions. I had bad bouts of Costalchondritis and Pleuresy and just really bad things happening. I went to several different doctors to continously be told that there was nothing wrog with me and that I was stressing needlessly. I hit the ER on numerous occasions due to the pain of headaches, and joints and back and costalchondritis. I was told several times that I was just looking for narcotics etc. It was terrible to say the very least.
What are all of your symptoms? The Lupus Foundation has listed 11 different criteria that they use to determine if you have Lupus. You have to meet at least 4 of the criteria that they have listed. Have you looked at the The American Lupus Foundation website to see what they list for the criteria to determine if you have Lupus?
Have you seen a Rheumatologist? I think that you need to see one and ask them to test you for Lupus. Take a list of all of your symptoms and any lab results that you have to the office and let the doctor go over them. Please keep posting as we are here for you and want to help you any way that we can.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.