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Thread: Diagnose with sjogren's Syndrome a week ago

  1. #1
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    Unhappy Diagnose with sjogren's Syndrome a week ago

    Hi all


    I'm Lisa , I just been diagnosed with ss a week ago.
    I'm really confuse about it, my esr blood are normal, all the blood test also normal, neg Ana, only got pos anti ro. But I do have symptom, like 2 years ago I started develop recurrent mouth ulcer, the a year ago I have join pains especially in the hands,, I also got tinitus.
    Is it really what happen to people with ss? My join pain is not really hurt it's come and go. I don't have fertique, but I have panic disorder.
    I'm afraid to start the medication.
    I'm worry about the side effects.
    Please help

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    Default

    i said hi on your first thread.
    thought i would say hi here too


    hi

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    Liz, I don't have SS but I can tell you that if a rock believes you have it and prescribed meds for you, please dont let you fears stop you from taking it. The disease is almost always worse than the side effects. If the side effects bother you, call your doc, but work with the doc to balance you out. The meds may even calm the panic attacks. Bless you as you learn to cope with this new diagnosis.

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    Hi ..
    sorry , First time use this site
    Thank you for your info

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    What is the esr blood test of yours tell you? I'm just afraid the doc miss diagnose my case.
    Guess I'm hoping he was wrong

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    I have SS,i have the dry eyes feel gritty,fatigue etc...dont panic about it....oh i have those too. You have come to a good place to discuss it.I have to go now but keep posting and also you can ask your doctor if you have any questions,thats what theyre paid for.But i know some people besides me have it so they will come here and help you.I'll be back later hopefully so try not to worry.There is a thread in here somewhere about srjogrens i'll try n find it for you.
    lots of love
    Amandaxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Thankyou Amanda xxxxxx

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    Lis ive been looking ad can not see it but there is deffinately a thread on srjogrens as most of us have it. I'll go get you something now offline....brb
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Default hi

    http://www.sjogrens-guidebook.com/20...yword=Sjogrens

    Here is one.Have a read through or just type in srjogrens and there is so much info. But keep posting here as many have it,but they are just not online right now.Im in the UK so just have a read and i hope it helps you understand it a little better.
    Love
    Amanda.xxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Thank you so much Amanda
    Lisaxxxx

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