Redhead, it's only been about 11 months for me, so I'm not an expert. But I'm learning that some life style changes DO make a difference for me. Some are simple: like getting more sleep; resting when my body tells me to (when I'm able); not overeating; staying out of the sun. Some aren't as simple: avoiding stess or at least handling it in a way that reduces the level of the stress for me; saying "No" to people when I know what they're asking me to do is going to set me back; slowing down at work; asking for help when I need it (I was a BIG do it myself person!)
I work part time now - big, big lifestyle change for me. And, I can work from home when I need to - another big change.
But Saysusie is right - no matter what you do, you're still going to experience ups and downs with this disease. Just about the time I think I understand it all and I'm stable, some new symptom or complication comes along. But, all in all, I think the changes I've made in my lifestyle are helping me manage my illness without 'giving in' to it or giving up. I hope you'll find your balance, Redhead. There defnintely IS life after a diagnosis of lupus. It just takes on a new shape. In a way, the good things in my life are now in sharper focus, and I think I appreciate them now. A day with my granddaugher (a redhead, by the way!) becomes so special. Maybe God can use something like lupus as a way of slowing us down enough to see, here, feel - really experience what's around us - and maybe take some time to get to know Him! (something a little more subtle than lupus would've been OK with me, however :lol: )
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."