I know its hard to give up the things you love to do, but your health should always be a top priority. I had my first seizure in July 2004, a month after being diagnosed with kidney lupus. In medical terms, it was known as a tonic-clonic grand mal seizure. The MRI I did showed mild lupus cerebritis. Since then, I haven't had seizures. But two weeks ago I fainted and had some convulsions for a very short time.
I'm scared of having another big seizure. How often do you get seizures? And what was your diagnosis?
I'm on 300mg of Epanutin, been on it for 2 1/2 years now. What I don't understand is why I'm still on it when I haven't had a major seizure since the last. Everytime I have my blood epanutin level checked it's low. The doctor thinks I'm not taking the medication.
Please tell me more about your experience with seizures if that's alright because it sort of relates to me.
Good luck,,, take care of yourself
I was diagnosed with lupus nephritis, confirmed by bloodwork and kidney biopsy, and mild lupus cerebritis (epileptiform) in June 2004.
Medications: CellCept, Prednisone; Phenytoin; Lipitor; Zestril, Norvasc; Aranesp (darbepoetin alfa).