This is exactly what I have been dealing with myself. I have been sick most of my life, even before diagnosis, due to an extremely rare genetic condition. So normal has never been normal for me. But since diagnosis I was forced to drop out of graduate school and quit my job. I'm constantly in and out of the hospital and most days I have trouble with doing most of my errands before getting too tired. I was also forced to move back in with my parents so they can take care of me especially when I'm doing my infusions. I wonder if it will get better or if possibly I might even get back to the way I was before I got sick from Lupus. It might not have been great but I would definately trade everything to have it back! Being 25 and back with my parents is difficult and I'm about 6 hours away from all of my friends. I don't know if I will ever come to a point where I consider this normal. Right now I think I would just take feeling even a tiny bit better over a new normal. I wish everyone luck in finding a new normal or even getting the old one back!
"Success is not measured by what a man accomplishes, but by the courage with which he has maintained the struggle against overwhelming odds." -- Charles Lindbergh