Gradengail, I'm glad you found this forum. You'll find a lot of support and good information here.
You need to PRESS your doctor for tests and a referral to a good rheumatologist, or you need to find another doctor. I know sometimes that's hard to do, depending on your location or your insurance. Do you have a patient advocate in the clinic or hospital where you get care? Sometimes they can help. You need someone who will know what kind of tests to run. You may or may not have lupus - lots of diseases can look like lupus - but you certainly have something going on that needs diagnosis and treatment. The right medications can make a world of difference in how you feel.
Keep pushing, Gradengail. Don't give up - if a family member can press the doctors on your behalf, better yet. We'll be here to offer support and advice, but you MUST get the medical help you need. My prayers are with you.
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."