Advanced CNS Lupus Questions????
I went to the doctor today because I am sick again; had pneumonia at the beginning of the year. We talked at length about the realities of my going back to work. I wasn't surprised at her comments and the "speech" that because I have a few good weeks doesn't mean I'm strong enough for work. She said that the information that occurs in my brain, kills cells - thus, the memory problems, speech, etc.
Is there anyone here with advanced CNS lupus, and how to cope, what therapies are working, what should I expect, etc. Understanding that my kidney function is decreasing, and the brain undependable; I'm scared.
Anyone with experience or knowledge? I'm not finding out too much on the web.
So tired, need to run for now.
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown