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Thread: how many men are out there

  1. #41
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    sometimes angery female??????
    and yes men are welcome.well it's not my board but I'm sure anyone with lupus is welcome.

  2. #42
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    Quote Originally Posted by brandy74
    isnt that a *sometimes angry female* when you go in and YOU know somethings wrong but they cant fin anything wrong.
    like most forums when you type certain words, the forums will automatically change them to a more politically correct statement, since you dont work do you collect ssdi?? ive been denied once and am currently under reconsideration, looking for tips
    Fair Oaks California

  3. #43
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    yeah I collect ssi or whatever it is.

  4. #44
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    Hi all I'm 26 from south africa, and have had lupus for nearly 12 years
    I intend to live forever, so far so good

  5. #45
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    Well over all there aint to many of us on here that are male, i knew it was rare in males but not this rare, unless it is just not to many males have found this website.


    hello morpheus, how are you, do you still hold a job at the moment? what are your interests?


    shane

  6. #46
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    Hi utenutter, I think its more a case of awareness, not lots of people know about the various forums and online resources, I found this forum whil i was at university by accident, (or maybe it was just fate ).

    I was actually looking for any chat rooms that were lupus related.

    Anyway, I still hold a full time job, Lupus hasnt affected me much where my career is concerned, I was a baker before this , which was rather strenuous, did feel it after 5 years of working in the bakery lol.

    I am a web developer now.

    How bout u?
    I intend to live forever, so far so good

  7. #47
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    yeah i still work full time, i work as a printer. lupus is starting to affect my work situation as i run a process where we use intense uv light to cure our coatings over the print and i started getting majour breakouts of the rash on my face when i run this process, i curretntly have a letter from my doctor saying i cant run it but they seem as they still want me to run, they really don't understand where i am coming from.

    I am off to see my specialist tomorrow and i will have a talk to him and see if he can back up my GP's letter and present that to my boss and see what they have to say.

    being a web dveloper is there much work in that? i suppose there would be considering how big the internet is these days.

    shane

  8. #48
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    Yes there is lots of work in it, most companies these days are going for the web based applications, as these are easier and mostly cheaper to develop. Its not very physically straining, but sitting whole day can be tiring too <sigh> lol.
    However u need some formal training and/or understanding of computer programming.
    Not the same as web designing, which is much more creative driven.

    all the best
    I intend to live forever, so far so good

  9. #49
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    Hey Morpheus,

    Ive recently gone to school for geographic information systems,which is mostly a web based program, yes being chained to a desk is very hard with this disease, in fact i think that is one of the factors that sent me into a major flare, although ive had to give up work for now, and it is painful to move in a regular manner it hurts not to move also. there is not a desk chair made that is comfortable enough, i sure made alot of trips to the coffe pot when i was working,
    hang in there!!!
    Fair Oaks California

  10. #50
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    Quote Originally Posted by utenutter
    yeah i still work full time, i work as a printer. lupus is starting to affect my work situation as i run a process where we use intense uv light to cure our coatings over the print and i started getting majour breakouts of the rash on my face when i run this process, i curretntly have a letter from my doctor saying i cant run it but they seem as they still want me to run, they really don't understand where i am coming from.

    shane
    Dont want to sound like a wet blanket but....

    As I write I am bedridden with a classic lupus 'flare'. Here for 3 days now, or is it 4. Headache, fatigue, shaking hands, pain, depression. The usual.
    I've been getting worse over the last 3 weeks, and I've had a few days off sick already.

    This morning I emailed the "boss" (I'm a contractor actually) to say I wouldnt be in today (2nd day). Email reply was we need to discuss the terms of your contract.

    Oh yes here we go again.

    Ok so I call him up, and politely express my dissapointment at his disability discrimination (etc, etc), that I'm not in any condition to discuss anything with him, except that I would like an apology.

    Him: "Umm, no. At least I want to give you an apology face to face".

    Me: "But you've offended me via email, how come you cant even apologise via email?".

    Him: "I like to do these things face to face".

    Yeah, right. We'll I guess I've just extinguished my only obligation to resolve the matter myself before dragging him off the the Equal Opportunity Commission. My formal complaint will be emailed overnight. Of course the justice is only token - the EOC does not award damages and the financial penalties are very light ($250-$2500) compare with what this will cost me.

    I spent the rest of this afternoon looking for my next contract - disability discrimination is usually always fatal to a contract. I rang up an agent at 530pm and he'll be calling me tomorrow morning for me to decide which position I'd like like. At the moment my skills are currently in high demand. So I dont have to put up with people like this (at the moment, that is).

    But I really despise these cowardly scum who take my illness into account in making decisions about "our contract" :x . Its bad enough my having this condition. I dont need these people to make my life hell. Its already hell.

    Nuff said for now. I'll start this in a new thread and keep you all posted.

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