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Thread: how many men are out there

  1. #31
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    Quote Originally Posted by TERIOD
    not that im happy to see other people with this disease, I was finally DX in dec 06 after fighting with it for several years, and after a stroke in 2003, ive had to quit working as a mechanic and going to school, at 44 no one seems to want to hire and i have to be truthful about whats going on with me healthwise, with all the drugs im on, its hard sometimes to remember what i even went to school for!!, im six months in on cellcept therapy and there doesnt appear to be any change except for bp and proteins, has there been any luck out there with ssd, like ive read in other posts, it seems as tho many people out there dont understand what this is like, im not liking the reality of this disease, what do some of you do to get over the mindset???? :shock: :shock: :shock: :shock:
    I think a lot of people have it for yrs. before it's diagnosed partly maybe an even bigger part is becouse it's like so many others and it's so hard to diagnose.what kind of stroke did you have?I had a "brain steam"stroke about 12 yrs. ago.I'm currently on cellept have been for about 2-3 yrs. and if i wasnt on it I think I'd be in trouble.sorry to hear it's not working for you.

  2. #32
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    I too had a brain stem stroke,with major ringing in the ears, nausea and dizziness leading up to it, well i cant say that i dont know the cellcept isnt working since im not even sure what its supposed to be doing?? although the tests show good numbers, i still feel like ive been hit by a truck, the docs tell me ill be going through this treatment for at least a year, i guess from what you say, it could be longer tho?? do you work?? i cant seem to gain enough energy to go back to work
    Fair Oaks California

  3. #33
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    Quote Originally Posted by TERIOD
    I too had a brain stem stroke,with major ringing in the ears, nausea and dizziness leading up to it, well i cant say that i dont know the cellcept isnt working since im not even sure what its supposed to be doing?? although the tests show good numbers, i still feel like ive been hit by a truck, the docs tell me ill be going through this treatment for at least a year, i guess from what you say, it could be longer tho?? do you work?? i cant seem to gain enough energy to go back to work
    OMG someone else who had a brainsteam stroke no one i've ever talked to has had one.leading up to mine I was dizzy,headaches,and paralized on one side.i was always going to the e.r. for those but they NEVER found anything and did i tell ya finally one night they admitted me and that night in the hospital I had the stroke.isnt that crazy!the main thing the celecept is suppose to do is keep the lupus under control.no, i dont work.i used to babysit my nieces&nepews.but no I've never worked after the stroke it left me with a foot drop that I never got rid of.if you dont have to DONT push yourself to go back to work.to me that just makes things for you harder(I mean more tired).

  4. #34
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    forgot to add after the stroke i had I was on cytoxin for about 18 months.they tryed it in pill form but I just dont drink water very well at all and thats one thing they said you HAVE to do so they put me on I.V. form with anti nausea med.thank-god I only had to have it every month but man talk about worn out it would take me about all that time to recop then have to go back.

  5. #35
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    Default stroke

    thats pretty much what happened to me, i kept going to er and they couldnt find anhy thing wrong after blood tests, ekg's, spinal taps, and anything else they could throw at me, until one day i stroked out then everything went away, no leftovers for, but for quite along time after it i did nothing but vicodin and sleep

    no talk about cytoxin yet so maybe things are workin like they should
    Fair Oaks California

  6. #36
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    isnt that a bitch when you go in and YOU know somethings wrong but they cant fin anything wrong.

  7. #37
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    HEHE, ya it was but overall for a VA hospital i get very decent care, the treatment and care i get so far exceeds any private organizations ive dealt with so far, i guess im one of the lucky few that havent had to deal with bad va hospitals

    bitch i like the way the forum changes words
    Fair Oaks California

  8. #38
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    This is Men's Forum, no?

  9. #39
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    hello

    i still hold a full time job and some days it is hard but i get through.i am probably not as sever as others though, if you need to talk about any thing i will have open ears, ha a good one.


    shane

  10. #40
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    Quote Originally Posted by Brian0025
    This is Men's Forum, no?
    ya but i would imagine anybody's welcome
    Fair Oaks California

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