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Thread: how many men are out there

  1. #111
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    hi this is steve.bryce. i am 49 and living in western australia. been diagnosed for 2 years, but suffered for over30.

  2. #112
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    42 yo, currently in South Texas, but from Houston. Active Law Enforcement Officer, diagnosed SLE and Sj in 2011. Any other police officers here working through SLE?

  3. #113
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    Im 25 out of Minnesota. I love my job but having been thinking that I should possibly change my career as well cause of UV light, I am a welding/fabricator/mechanic im surrounded but UV from welding or having to work on vehicales outside.

  4. #114
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    Quote Originally Posted by EricG View Post
    Im 25 out of Minnesota. I love my job but having been thinking that I should possibly change my career as well cause of UV light, I am a welding/fabricator/mechanic im surrounded but UV from welding or having to work on vehicales outside.
    I think environmental issues are a huge factor in how long we can remain in the workforce. Interior UV lights, outdoor UV, and communicable diseases (even minor ones like the flu) are of particular concern to me. I moved to another area of my profession before I was diagnosed because I couldn't recover from otherwise minor injuries (which were just part of the job)..

  5. #115
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    been 4 months since last post, any dudes out there?

    35, diagnosed SLE and probably Sjorgens almost 3 1/2 yrs ago.
    Think I have been different entire life, sick too often, hypochondriac etc since forever and pain, since atleast 16. Would crash bad if I went into super hard MMA training mode for too long, be in bed 7-10 days with "viral infection".

    Men get low testosterone often, high estrogen around my age, but my testosterone so bad, think lupus wrecked my hormones. If you haven't, check them. My Estrogen was high, DHEA super low (common in woman with SLE, my theory is that most are post menopausal, woman are low in DHEA anyway, and the extra testosterone this gives (as well as estrogen) when it converts would give them percieved boost is my guess. Super High pregnenolone, top specialist doesn't know why (many men with low test are low, not 3 times normal range like me.....though I did find one source this could be cause inflammation perhaps or combating it)
    Anyone TRT HRT out there????

    been scared lately, last month the off and on tingling/numbness in my entire left arm/left pec, and a bit to my big toe, my first symptom actually, is going on. Does the tingling getting worse mean anything? common?

    Horrible hand pain, have to sleep with hands between pillows hard to fall asleep.

    Still try to remain active, MMA/Grappling/Combatives etc, but can't push too hard. I spend my time in bed or online days between training pretty much. Is all I know, hard to live the life I want.

    Getting more pour, worse hand pain over time, more tingles.

    only on plaquenol, ....tramadol 2 time per day for pain, muscle relaxer at night, lots of suppliments now including DHEA etc.

    Any men on TRT or into martial arts heavily, can email me danthewolfman@hotmail.com

    Thanks

  6. #116
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    Hello Dan
    Lupus sure has a way of slowing us down! I am 51 and still work construction full time. I still do alot of climbing,toteing and packing LOL- but not like I used to.
    I work out using a bow-flex-more for flexability than strength training.

    I am on plaquenol and cellcept.

    I certainly understand about pain and trouble sleeping.Sometimes my arms and legs ache so bad I have trouble falling asleep and staying asleep!

    I would caution you to be carefull about supplements-I started taking a mens vitamin (mega-mens) about a year ago-it actually made my arm and leg(not just muscle but bone pain as well) worse!
    DHEA is a imuno stimulant-which is the last thing us lupies need. I quit taking it and felt better soon after.

    The mayo clinic website has a list of drugs and supplements us lupies should avoid or better yet ask your dr.

    Take Care Niall

  7. #117
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    I was looking for that list the other day for another post, Niall, and can't find it, but I did find
    http://www.hopkinslupus.org/lupus-in...rmation/avoid/
    which is John Hopkins. I'm almost certain there's one that's longer, and in table format... Maybe it's in the "stickies" here... hmmm

    Slightly low B12 does the neuropathy-like symptoms for me, but I can't keep up with it (the B12) anymore, and have to have injections. I can't do MMA, even just "plain" Tae Kwan Do or Kung Fu anymore. Just the "warm-up" does me in anymore. (I now live vicariously through my oldest boy... tic) I had to quit dirt bike racing and even "play" riding back in 1992, and now I'm left with the recumbant bike and simple "core" exercises. But I'm 56, and really shouldn't be doing dirt bikes anyway... I was dangerous to trees, rocks & dirt, even at my best... lol - The "having to slow down", as opposed to "wanting to slow down" is the hard part for me.
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

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  9. #118
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    hi,im 48 male in melbourne australia

  10. #119
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    Hi there - I'm a newbie bloke aged 43, based in the UK, married with 2 great kids.
    I've been suffering with various symptoms over the years and never connected them all until a recent operation showed a couple of additional pointers and was sent for a load of blood tests.
    The tests came back thebther day and most I tested positive for ANA (incl screen test showing speckled) and RF. So I have not had the 'official' diagnosis but will be seeing my GP next week who will probably refer me on to a specialist.
    I suspect that it will take some time before I get a diagnosis but I have spent my whole life in the shadow of my mothers SLE as she was diagnosed after a PE when giving birth to me and it is a clear autoimmune of some sort.
    I love sports and have more and more found it increasingly difficult to fnd the energy to do anything but I keep percevering and definitely have to rest afterwards...

    Cheers,

    Don

  11. #120
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Welcome to WHL Don!

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