Help! Does anyone know any doctors in Virginia?
I just had the worst doctor's appointment with a "world known, published" rhuemetologist. He told me that my blood/urine tests show that I don't have active Lupus despite a 320 ANA w/ rim pattern, Arthritis, blood disorders, mouth sores, unexplained fevers, extreme fatigue and butterfly rashes......and then he said that the blood disorder may explain the ANA test but would only cause the other symptoms if it was Lupus related. I asked him if that meant I had inactive Lupus, he then shrugged his shoulders and walked out saying "Thanks for coming in". He refused to discuss any of my other symptoms. My arthritis is getting so bad that my primary has been giving me shots of novacaine, cortasone and prednisone in my hips and back, but he wouldn't discuss it. He told me to take Tylenol!
I'm NOT a hypercondriac and I have record of my symptoms being diagnosed and treated. It's not that I WANT a diagnosis of LUPUS, but I want some answers on WHY I feel so bad and what I can do. I'm frustrated, angry and depressed......Does anyone know of a doctor in Virginia that they would recommend? I emailed the Lupus foundation for VA and they recommended the group I went to....the Dr I saw was the only one taking new patients. Now I know why. Can anyone help me?
I hope that someone is able to help you find a "competent" doctor. Just because a doctor is published, doesn't mean that he is the guy to go to when you need treatment. He sounds like an arrogant jerk to me!!
You are absolutely right to want (and insist) on a doctor who will take the time to find out exactly what is wrong and begin treatment for you. No, we do not want to be diagnosed with a disease, but at least having a diagnosis will ease our fears and start us on a path of treatment and, hopefully, recovery.
For him to just dismiss you like that was totally unprofessional. I wish that we were able to demand our money back from doctors who do absolutely nothing for us!!! We pay for services, get treated like children, get dismissed and then we have no right to demand our money back because we DID NOT get the service we paid for!!!
Please, continue your search for a new rheumatologist. Make sure that you tell your new doctor EXACTLY what this doctor did and said. Tell him what you expect and what you need. If he is unable to provide the treatment and service that you need, move on with your search!!
I wish you the best of luck. Keep us posted!!