OMG!!! What kind of idiots are they passing off as doctors in the service???? I hope that he has not done you any irreversible harm!! Are you back on your meds???
Most of us with Lupus have found that we must direct our physicians, insist that they acknowledge our illness and that they treat us for that illness.
If your current doctors are arguing about what your diagnosis is, then you get involved in that argument and fight for your cause. Make it clear to them that when you were being treated for LUPUS, your symptoms were leveled out...when you were taken off of your meds, you crashed! Until they can decide amongst themselves, you want to continue with your lupus treatments!!
You need to deal with a rheumatologist and he should be your lead physician. Ask him/her if they are knowledgeable about lupus, its symptoms, treatments and therapies. You must become knowledgeable about the disease, its symptoms, treatments and therapies so that you will be able to effectively deal with your doctors.
One thing is for sure, Lupus is a CHRONIC disease....that means it does not just go away and then come back. It is with you forever unless you go into remission and that happens very gradually!!
I wish you the best of luck! Keep us advised of how things go with your new doctor and your rheumatologist!