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Thread: Heard from Littlered?

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    Default Heard from Littlered?

    Has anyone heard from Littlered? Haven't seen any posts from her in a week or so. Hope she's OK!

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Jody, I heard from littlered and she's not doing so hot - lots of side effects from the methotrexate and it doesn't seem to be helping her any. She says she will be back when she's feeling a little better.

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    Sorry to hear that - I was afraid it was something like that. She'll be in my prayers.

    Jody
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Gosh
    I do hope that the methotrexate begins to help her or that they are able to find an alternative. It's bad enough being sick with the symptoms of Lupus and then have to deal with the side-effects of medications.
    I will keep her in my prayers!!

    Saysusie

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    Default sorry, everyone...

    I wish I could say "I'm fine," but I'm not. The MTX was making me s miserable, my doctor cut it down one third the dose. Then, I guess because my immune system was suppressed by the MTX, I caught an intestinal flu. since I don't go anywhere, I could only have gotten it from my husband. By the way, HE was only sick with it for a day or two...I had it for a week. Bananas, Rice, Applesauce and Toast (with weak decaf tea) was my "diet" until it finally went away...BUT it seems that the illness woke up my immune system and now I'm in flare. The flare seems to be subsiding (tripled up on the Prednisone like the doc told me to.) I will see my doctor on Wednesday. I truly do want to give the MTX a fair try, but only if he can prescribe something (like compazine or something other than Phenergan) to take care of the constant nausea. If not I want to switch to Imuran. I am NOT "throwing in the towel" on trying ANY meds that will knock this disease out for awhile.
    On a brighter note, my head now feels like sandpaper! Before, it was smooth as a baby's, with some fuzzy "down"....this means my hair is coming BACK!!!!(I hope, I hope) My deepest love and appreciation to you all for caring and for your prayers--love, Kathy

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    Kathy, so sorry you're having such a rough time. When do you see the kidney specialist? You might want to hold off making any treatment decisions until you get his input - cellcept might be a better option for you and most people tolerate it well.

    REST REST REST!

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    I see the kidney specialist next Monday. Its kind of funny that you say, rest, rest, rest! I now have almost more pajamas than I have "regular" clothes, LOL! G bought me a lot of bandanas in cute colors, so I have a matching bandana for every pajama outfit. Maybe it's just my silly sense of humor, but I think this is so funny! Love, Kathy

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    I'm so glad to see that you're back, Kathy, but so sorry you're having such a rough time. I hope the visit to kidney specialist will give you some answers - being constantly nauseous is just the absolute worst as far as I'm concerned. My heart goes out to you. When your hair grows back in you'll have to post a picture!
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Kathy;
    I am happy to see that you are back but I am so sorry that you are still having such a difficult time with the methotrexate and nausea and now a flare due to the flu! You are such a fighter, I truly admire you!! I am SOOOO happy about your hair! I will chant, pray, light a candle, do a moondance to wish you continued hair growth (lol)
    Please continue to take care of yourself and keep up the good fight! You are a trooper!

    Much Love
    Saysusie

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    LITTLERED... ask your doc if you can switch to mtx injections... I was soooo sick all the time from the pills and now that I am on injections it has made a WORLD of difference for me. I am no longer nauseous. I'm sorry you're going through it. Hang in there...Lu
    For I know the plans I have for you declares the Lord, plans for good and not evil to give you a future and a hope. Jeremiah 29:11

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