Another suggestion I would make is to have the lab give you a copy of all test results. I have a spread sheet so that I can keep track of the important "numbers" for myself. I slipped through the cracks getting diagnosed, but I won't ever again! Just an idea to help you both feel more informed and manage this disease.

Also, diagnosis and dealing with a chronic illness can be stressful on a relationship. I know you are doing your best to care for your husband, but don't forget to take care of yourself, too. This is so important and you deserve to get support as well. I hope that coming here to talk is helpful to you and I hope that you realize how great you are for being a supportive spouse. Having Lupus and a caring, supportive husband, I can't tell you how important that is to me managing my health. I applaud you for all you are doing.