HELLO @ ALL
PLS ANSWER ME A FEW QUESTIONS:
1) I would like to know how old you are
2) when you were diagnosted with SLE
3) are you in a remission or not
4) do u have involment of the organs
5) what time are u usually online
(never saw anybody online when i was :roll: )
Hi - I haven't figured the online thing yet.
I was diagnosed in Nove. 2000 with involvement of the blood mostly, anemia, phospholypic anti bodies hav a gay old time, pleursy, arthritis, and fibromyalgia symptoms which I still have. Am on cyclosporin to keep immune system form turning on itself to put it simple. Blood thiners, and folic acid, etc.
Hi Moon :P
I was diagnosed in 1985 - I've been in remission since about 1991. I am the moderator for this forum which was set up in memory of my daughter, Lauri Amber Reinke-Diggs, who died from complications of LUPUS in 1999.
I am generally on the site in the early mornings (California Time) - around 8:00 am
You are a welcome addition to our forum :lol:
Peace and BLessings to you
1) I am 24 years old
2) I was diagnosed at 20 yrs old
3) I am not in remission but...
4) I have been very lucky not to have any major organ involvement
5) I am usually online between 9-5 California time
YOu have a creative online name!
wishing health and strength to all
thank you for ur answers!Originally Posted by MOON
i really need to be in contact with others.
can't speak with family or friends.
2) not yet, but think since 1999
3) not sure :?
4) not sure :?
5) usually in the evening between 9 and 11pm
(but this is Europe time :shock: )
-->if i correct understood, most of u in the USA
are 9-11 hours behind us, so it should be
around 12am /1pm ... anyone around here in
the lunch breack :?:
would be great to be in contact with you
I am 27 years old, diagnosed at 18 years old. Definitely not in remission, having quite a tough time. Some organ involvement. I just look forward to my "good days". I'll take what I can get. I am on mostly at 9-10pm or around there, depending on my schedule.
I'm 21 years old who was diagnosed in April 200l with SLE. Right now it's not in remission, I'm having hair loss . But no organs are involved . I'm usually on line between 4-6 PM.
It would be great to stay in touch with others.
I 30 years-old was dx'd with SLE in febuary 1996 right before my son was born March. Currently I have no organ involvement at all and take meds daily to keep from having a flare-up. Last flare up was August of last year when husbands grandfather passed away.
Just found this website yesterday and I am glad I did!!!!!!