Page 1 of 4 123 ... LastLast
Results 1 to 10 of 36

Thread: PLS EVERYONE READ

  1. #1
    Join Date
    Nov 2003
    Posts
    15
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default PLS EVERYONE READ

    HELLO @ ALL

    PLS ANSWER ME A FEW QUESTIONS:

    1) I would like to know how old you are
    2) when you were diagnosted with SLE
    3) are you in a remission or not
    4) do u have involment of the organs

    5) what time are u usually online
    (never saw anybody online when i was :roll: )

  2. #2
    Join Date
    Nov 2003
    Posts
    15
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    no one?

  3. #3
    Join Date
    Sep 2003
    Posts
    6
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi - I haven't figured the online thing yet.
    I was diagnosed in Nove. 2000 with involvement of the blood mostly, anemia, phospholypic anti bodies hav a gay old time, pleursy, arthritis, and fibromyalgia symptoms which I still have. Am on cyclosporin to keep immune system form turning on itself to put it simple. Blood thiners, and folic acid, etc.
    Soreangel

  4. #4
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,721
    Blog Entries
    9
    Thanks
    1,578
    Thanked 919 Times in 582 Posts

    Default

    Hi Moon :P
    I was diagnosed in 1985 - I've been in remission since about 1991. I am the moderator for this forum which was set up in memory of my daughter, Lauri Amber Reinke-Diggs, who died from complications of LUPUS in 1999.

    I am generally on the site in the early mornings (California Time) - around 8:00 am

    You are a welcome addition to our forum :lol:

    Peace and BLessings to you
    Saysusie

  5. #5
    Join Date
    Nov 2003
    Location
    San Francisco, CA
    Posts
    16
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Hi Moon!

    1) I am 24 years old
    2) I was diagnosed at 20 yrs old
    3) I am not in remission but...
    4) I have been very lucky not to have any major organ involvement
    5) I am usually online between 9-5 California time

    YOu have a creative online name!
    wishing health and strength to all

  6. #6
    Join Date
    Nov 2003
    Posts
    15
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Re: PLS EVERYONE READ

    Quote Originally Posted by MOON
    HELLO @ ALL

    PLS ANSWER ME A FEW QUESTIONS:

    1) I would like to know how old you are
    2) when you were diagnosted with SLE
    3) are you in a remission or not
    4) do u have involment of the organs

    5) what time are u usually online
    (never saw anybody online when i was :roll: )
    thank you for ur answers!
    i really need to be in contact with others.
    can't speak with family or friends.

    1) 23
    2) not yet, but think since 1999
    3) not sure :?
    4) not sure :?
    5) usually in the evening between 9 and 11pm
    (but this is Europe time :shock: )
    -->if i correct understood, most of u in the USA
    are 9-11 hours behind us, so it should be
    around 12am /1pm ... anyone around here in
    the lunch breack :?:

  7. #7
    Join Date
    Nov 2003
    Posts
    15
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    would be great to be in contact with you

  8. #8
    Join Date
    Aug 2003
    Location
    British Columbia, Canada
    Posts
    76
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi Moon,

    I am 27 years old, diagnosed at 18 years old. Definitely not in remission, having quite a tough time. Some organ involvement. I just look forward to my "good days". I'll take what I can get. I am on mostly at 9-10pm or around there, depending on my schedule.

    Good luck,
    Jen

  9. #9
    Join Date
    Nov 2003
    Posts
    1
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi

    I'm 21 years old who was diagnosed in April 200l with SLE. Right now it's not in remission, I'm having hair loss . But no organs are involved . I'm usually on line between 4-6 PM.
    It would be great to stay in touch with others.
    -Thanks
    -Maria-

  10. #10
    Join Date
    Nov 2003
    Location
    Texas
    Posts
    1
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I 30 years-old was dx'd with SLE in febuary 1996 right before my son was born March. Currently I have no organ involvement at all and take meds daily to keep from having a flare-up. Last flare up was August of last year when husbands grandfather passed away.
    Just found this website yesterday and I am glad I did!!!!!!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •