Pregnancy and Lupus???
Has anyone had a baby after being diagnosed with Lupus? I am curious as I miscarried in May (probably due to Lupus, I had no symptoms but they started soon after) and I really wanted that 3rd baby. I was diagnosed in August after a horrific summer of total crippling pain in my joints but now am feeling quite good. I have the DVT antibody as well as the one for "fetal heartblock". I was told not to think about having kids for another two years until this lupus stuff in under control or gone...I am in total agreement with this but what happens if I accidently get pregnant? Can anyone share their pregnancy experience with me? Should I maybe just say Thank God for my two kids and just put the baby desires behind me. Are my odds against me? Let me know if anyone out there has had a pregnancy after diagnosis....Thanks
Hi, Tanyaw - there are a couple of women on the forum who are pregnant now, so hopefully they will be able to share their experiences with you. Having the antiphopholipid antibodies is associated with frequent miscarriages, but knowing you have the antibodies before you get pregnant means the doctors can treat you as a high risk pregnancy from the outset. Many women with APLS take daily aspirin durinig the course of their pregnancies to prevent miscarriage.
You should also talk to your doctors about using two reliable forms of birth control to avoid pregnancy until you are ready for it. Some of the medications prescribed for lupus patients can actually make oral contraceptives less effective. And with your history of APLS, hormones patches, etc. are not a good option for you because of your increased risk of DVT. So talk to your GYN about the best contraception for you, and be sure to let him/her know about the lupus and APLS.
So many advances in obstetrical are being made now that many "impossible" pregnancies are now living, breathing, squalling babies. So don't lose hope - get the best care possible and go from there.
I have 2 kids as well and got diagnosed after my 2nd. I too would love a 3rd.....I haven't been doing well enough to even contemplate though until maybe now?? Anyhow, I will post anything I find related to the topic. I do know that it is best to wait 6mths-1 year after rituxan therapy. I have also had heart surgery in the past year - so not sure if my heart can take it. I guess the biggest challenge in my mind is managing without or limiting the meds. I feel pretty uncomfortable with taking anything that has had limited safety testing for fetal health. I am leaning towards a compact family at this point....grateful they have each other.
PS My first baby had an abnormally slow heart rate right after birth. It was fine within a few days -could this be the fetal heart block they talk about? We didn't know about the lupus at all at that point....It was really scary though.
Let me tell you that I understand what you mean by wanting that third child. I had two children before my diagnosis in April and had already been trying for a year to get pregnant before that. After my diagnosis when I'd bring up the fact that I someday wanted more kids with my rheumy, he said, "Oh, no, too high risk. You already have a boy and girl. Why do you want more?" Well, my doctor is Chinese, so I think he thinks two is alot.
Anyway, I got pregnant in August as a surprise. I was excited, yet incredibly frightened since I still hadn't gotten the Lupus under control and was on medication. I had to stop all meds except the prednisone right away and was told to make sure to take my Vitamin Bs to prevent a miscarriage (this is also good to do BEFORE you get pregnant).
I am now 16 weeks along and things are going great. I have alot of appointments and see specialists all the time to monitor the baby, but so far everything has been smooth. Of course I'm more sore and tired this pregnancy, but overall my symptoms have actually IMPROVED since getting pregnant. Apparently women with Lupus either get better or worse during pregnancy. I've been cutting back on the prednisone because I don't like the thought of being on meds while pregnant and doing other alternative things to prevent the joint pain and inflammation. So far it's worked for me.
I still have a ways to go in this pregnancy, but I have high hopes that I'll have a healthy baby with no complications. I keep telling myself that I had two healthy babies before, so why should this time be any different?
Sorry this is so long, but don't give up hope of having another baby. And if you do happen to get pregnant like I did, it may turn out to be a real blessing in your life. Good luck!
I noticed in the Ft. Campbell news that the 4th Brigade, 2nd Infantry Division, from Fort Lewis, is listed to be deployed to Iraq during the next cycle of troop rotations. I know your husband is stationed at Ft. Lewis - I hope he's not affected by this deployment. Hope you are still doing well with your pregnancy and feeling okay! Any info about the baby's sex yet, or is it still too early?
Yeah, that's my husband's unit. We are trying to get reassigned to be near family since I've been sick and need help with my kids. So hopefully we won't be here when they get deployed. But they say that they wouldn't deploy him anyway because of our situation. We'll see.
And it is too early to find out the baby's sex. We have to wait another month. Thanks for caring, Marycain. You're so sweet!
I hope he will be reassigned
or other arrangements made so he can stay close to you. Glad you are still doing okay - take care of yourself.
Thanks for your reply to my pregnancy inquiry. I am so pleased that your pregnancy is going well. You answered a lot of questions for me by telling me your story. Right now I am on a progesterone only pill so I am constantly paranoid about getting pregnant and I also get my period twice a month which is odd...I would love to have a third and was hoping to get it over and done with but my last pregnancy was not meant to be. I am worried as I have the DVT antibody as well as the fetal heart block one. I don't know the technical names for these as I am trying to forget about all this stuff that is happening to me...Silly, but this is my way of coping. I often wondered what you did if you got pregnant on all these meds. I hope for another baby in a few years but right now I am a lousy mommy to my two year old as I am always tired and so focused on trying to get myself better that she has been pushed to the wayside. Since I was so sick this summer prediagnosis, she really got her way with the nanny and has gotten seriously out of control and it is like I have no strength to deal with her. She is so different from my son but he was also raised totally by me and she unfortunately has been raised since June by the nanny. The nanny's attitude is let her do as she pleases as well as eat as she pleases (now she is obsessed with candy something that my son knew nothing of at her age)....anyway, I am rambling about a totally different subject...thanks again for taking the time to tell me about your little miracle...all the best to you.
I am currently 7.5 months pregnant with my second child and I was diagnosed with lupus shortly after the birth of my first. So far, so good...although I have had to continue taking a low dose of prednisone throughout. I had a small flare during the first trimester, but things have levelled off and are going really well now. I typically flare immediately after the birth (so there is that to look forward to lol). We are hopeful that all will go well.
GOod luck with everything!
Actually srosenb and atedj, your experiences are what gives young women like me hope- the first time I got pregnant was about 4 months ago- I thought I was just really sick from the preg. then I went to the hospital and spent 2 weeks straight there. Ended up miscarrying and finding out that I had SLE, after reading about the disease I had no hope for having my own kids,why would you want your child born with the possibility have having this disease? (then again no one in either side of my family has ever had it or any form of it and I still got it) Then I read your stories about having healthy children, it gives me hope! I know its off topic, I just wanted to say THANK YOU!