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Thread: Trying to deal

  1. #1
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    Default Trying to deal

    I was just recently diagnoised with lupus in September of this year but I have been dealing with the pain for over a year I was just taking OTC pain medications because I thought it would go away...so sad it did not go away it only got worse. One morning when I woke up and I could not move I finally had my husband take me to a urgent care in our area. It was there that my ANA tested positive, but that was just the begining I had to travel to another city to a specialist....long story short I was finally able to find a great doctor in my area.

    I have two small children and I think that not being here for them is the hardest part for me, I have had a aunt who has died from a massive heart attack brought on by her lupus and that really scares me. I am only 27 and I just feel like a old lady taking 4 different meds a day and taking methotrexate once a week to maintain. I am really ready for this to be over. I am glad that I found this site were there are people who can relate to what I am going through. I love my family dearly but they don't understand.

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    Hi Ms. Scott,
    I am glad that you found this site. The people that are on this site are nice and will be able to answer a lot of your questions. I myself have SLE and am on medications. I hope that you feel welcome here and don't be afraid to ask questions.

    Hugs,
    Kathleen
    Live one day at a time: It's easier that way

    Dx with SLE in 1994
    Dx with Sjogrens 1994
    Dishydrotic Eczema 1974
    Severe Osteo-Arthritis

    Meds:
    Imuran 125mg
    Plaquenil 400mg
    Sulindac (Clinoril) 400mg
    Soma prn up to 4 times a day
    Darvacet prn

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    welcome! this is an awesome place where you'll find people who really UNDERSTAND what it mans to deal with this disease. I find that the better educated about it I get, the less fear I have. WE are our first care practictioners....learning what to do and not to do is our first line of defense. Knowing how to talk to the doctors and understand what they (and lab tests) tell you crucial, and you'll get help with that here, too. Also, tons of knowlege about meds and treatment. So welcome to our community!

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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hi Ms. Scott;
    I truly understand your fear about what this disease can do. However, you must also know that Lupus affects each of us differently. Some of us have serious complications with our internal organs (like your aunt) and then some of us only have symptoms on our skin. So, please do not feel that, because your aunt suffered from serious symptms of her internal organs that you will also.
    You are taking four different meds each day; there are some of us who are taking upwards to 13 different meds or more each day. I am not saying this to minimize you or your symptoms, I just do not want you to worry yourself into worsening symptoms by thinking that your fate is and/or your future is grim.
    Continue to take your medications, take good care of yourself, try to exercise daily, change your diet, get rest and listen to your body. It is quite possible that you will be able to live a very long and a relatively normal life!!
    We are happy that you are here and I know that you will always find supportive, comforting and informative people here!!

    Peace and Blessings
    Saysusie

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