Please don't feel that you are alone in this response from people. I know the feeling and it is incredibly frustrating. My mom and sister, who both live in different states, have decided that I am exaggerating and whenever I am on the phone with either of them, they tell me I am "over-dramatizing". My mom is bipolar and she thinks I am just depressed and that if I just started taking the same anti-depressant she takes, I would feel better and that the Lupus would diminish.
My husband happens to have a cousin with Lupus. I have never met her, but my mother-in-law is very close to her. My mother-in-law is constantly saying "but that doesn't happen to Mandy" and "Mandy doesn't have to take those meds". So, anything that I say can't possibly be true because it's not happening to Mandy. It doesn't matter that she is 10 years younger than me and apparently is blessed with a much milder form of Lupus. In fact, she spent a week in Florida sunbathing with my in-laws and had no problems. Lucky her!
My father in law is one of those that if you can't see it and touch it, it isn't real. He has called me a big baby and a lazy whiner to my face. He has told my husband that he believes I am making it up so that I don't have to carry my share of the marital, parenting or household responsibilities. Hmmm, the fact that I work 40 plus hours a week, have two kids and I am the full-time parent when my husband is overseas in the military for six months at a time seems to have escaped his notice. The house hasn't burned down yet...
My husband has been great, but he does get angry and frustrated sometimes when he can't fix it and he can't see what I am complaining about. I can understand his frustration. I get frustrated too!
So, there you have it. A lot of people flat out don't understand and they are not going to. I won't even get into the issues I have with my co-workers. Some people refuse to understand because if they do, that means they have to deal with something unknown and scary and they might have to go out of their way sometimes, because not to would make them jerks. I don't mean to be jaded or callous but it's true.
Hang in there!
"If you think you can, you can. If you think you can't, you're right". - Mary Kay Ash