Is it Lupus?
My rheumatologist said that an absolute dianosis of Lupus wasn't necessary to begin treatment. I had enough symptoms that it was clearly autoimminue related, some sort of connective tissue disease, and most likely SLE. There is that magic "4 of 11" of the diagnostic criteria that must be met for a clinical diagnosis, but it's my understanding that this criteria is primarily important if you're going to be a participant in a study of some kind. It may also come into play for insurance purposes, I expect. So, bottom line would seem to be that you need to press your doctor to treat the symptoms you have, and follow up with additional tests. I'm new to this, but I've learned from many sources that diagnosis can take a long, long time. It's just not logical (or safe!) to wait for that to begin treatment.
"If you trust Google more than you trust your doctor than maybe it's time to switch doctors."