I haven't been around for a while, I decided to try to get on with my life but I am having increasing breathing problems. I wake up with panic attacks--gasping for breath but even when awake sometimes I feel as if there is not enough oxygen in the air. I have had bouts when i have felt very weak when breathless and twice seen the GP. I have had ECG's , bloods and they don't seem concerned. I am asthmatic but it doesn't feel asthma related. I also have a heart murmer which is classed as trivial. I was a nurse for many many years and try not to get things out of proportion but it does concern me. I do get costochondritis also but that is not usually causing me a problem when I am having breathing problems.
I go to London to the lupus clinic in january and will mention it then but I wondered if anybody else experiences this.