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Thread: Enough is Enough Already!

  1. #1
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    Default Enough is Enough Already!

    Just gotta' vent a little here. Last week I was in the hospital with yet another bout of peridarial effusion and a reaction to some new meds. That was scary, and laid me up most of the week. So, on Monday evening of this week, my weak right leg (I have a peripheral neuropathy, also caused by Lupus) gave out on me as I was going downstairs, and I landed on my fanny at the bottom. My foot's broken and I'm in a cast up to my knee. I can't drive, and I have 4 doctor's appointments in the next two weeks. My husband has to wait on me and act as my driver until I get this cast off. He's just loving this disease :x We could use some prayers, my friends. Patience is wearing a little thin.
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Default Bless your heart - I am so sorry this happened

    Sometimes it seems like the hits just keep coming. Can your doctor arrange for a home health aide or personal attendant to help out some? This might also be a good time to call your church and ask for help - I'm sure there are people who would be willing to drive you places to give your husband a break. I will be keeping you in my prayers for a speedy recovery.

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    Default Help at Home

    Thanks for the suggestions. I know the women in my office are also willing, but it's hard to ask for help. I've never been very good at that. I guess this is the time to learn.
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    I have learned that we MUST ask for help. For one thing, there are lots of people in our lives who love us but hesitate to ask to help us because they don't want us feeling like "cripples." I have several friends (husband too) who jump at the chance to take me places. THEY say it blesses THEM to bless ME! So why deny them a blessing? Besides, it's such fun to see them and get to visit...even if it is a doctor errand.
    Just a thought. Friends are there for a REASON!

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    Default BONE HEALING

    I found this article about the importance of nutrition in bone healing - I've had several fractures due to osteoporosis, so I know it's hard to get enough protein and calcium to help with bone healing when you can hardly get around to cook or shop - maybe this information will help.

    Not sure if this URL will work as a link, but you can cut and paste it into your address bar on your internet browser.

    http://lesann.tripod.com/healing%20fractures.htm

    There's also an old folk legend that the sound of a cat purring helps bone fractures to heal - I have no idea if this is true, but if you love cats as I do, who cares, it's a great reason to prop your leg up and pet a cat! That is definitely my idea of good therapy.

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    I know sometimes it seems like when it rains it pours. Take care hon and I'm sending good healing vibes your way.
    Stefanie
    SLE Lupus. Fibro, IBS, RA\

    Matt's Brown Eyed Girl!

    "I'm not broken, I'm antique; a little worn out but still beautiful if not more so because of it."

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    Default Enough is Enough - Thanks everyone!

    Thank you all who responded. I have had several emails from work friends today offering to help transport me. It is time I ask for help...I know you're right.

    I'm having a DexaScan next week so I'll see if my bones have been compromised by this disease (or the prednisone.) Might be why I suffered a break. I will read the info on bone health - thanks for the link!

    I have two cats (the pix on my posts looks just like them..they are sisters.) I love the sound of their purring, and I believe it's healing. When my son and his wife divorced last year, I got 'custody' of my granddaugher's kitties. Now when she visits she gets to see them (her Mom didn't want to keep them and I figured my granddaughter had enough loss to deal with.)
    "If you trust Google more than you trust your doctor than maybe it's time to switch doctors."

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    Maybe you will be the one to prove the legend of the purring cat is true by healing super quickly.

    Prednisone can definitely cause premature osteoporosis - I found this out the hard way with my first fracture. My doctors never mentioned osteoporosis prevention when I started taking prednisone - I'm glad you are having the bone density test, I think they should be standard for everyone on prednisone.

    I hope your foot heals quickly.

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    MaryCain, I don't know WHY they don't make it protocol to have a red flag osteo alert for anyone taking steroids! I am not lactose intolerant, have always eaten plenty of dairy AND took calcium and D supplements after menopause, yet my hip has the cracks in it. Now I'm doing Fosamax. Kinda tough on me (heartburn, IBS, etc) but better than broken bones!

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    Yes, it does make you wonder - I had almost every risk factor in the book except smoking - small bone structure, no dairy intake, family history, long term steroid use, medical menopause from taking lupron - yet no doctor mentioned it to me - I guess they also though I was too young for it to be a problem. It's still an ongoing problem for me because I still need steroids, I'm not on hormone therapy because of previous strokes, and I can't take fosamax, actonel, boniva etc. because of esophageal problems from the scleroderma, so it's one of those situations where the cure is as bad as the disease. I take monthly parathroid injections now to prevent further bone loss, but if they had been started early on, it would have prevented the bone loss. Having the severe osteoporosis is scary because even a sneeze can cause a fracture, my bones are so brittle. So far I've had multiple vertebral fractures, a massive bone infection that almost killed me, three rib fractures, my left hip has been fractured twice requiring surgery, also my wrist - all because pf osteoporosis. So it's a big issue for me - I nag all ny sisters, nieces and co-workers about bone density testing.

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