I was diagnosed when I was 48....and in five years time, I am now with kidney, heart, brain involvement. I've been told that lupus effects everyone differently. I know there are people here who have had lupus for more than 20 years - so if I may be so bold - I would suggest to not try to map out this disease on a timetable. Being a "professional planner" and working in the executive field for so long, this disease has really turned my world upside down. I take one day at a time - and some days, it's an hour at a time. Live every moment with thankfullness and gratitude mixed with patience, endurance, perserverance....and most importantly keep hope and faith in the forefront of your heart.
Saysusie and others on this site have lived years with this disease and they can share their experiences with you. I hope that you will stay connected with these people - they have become a lifeline for me. They are all so encouraging and helpful. I think you will find out for yourself how much these people really care.
So from this girl, I say learn as much about this disease as you possibly can. Ask lots and lots of questions. Take very good care of yourself, stay indoors, mostly - and don't be afraid to LIVE.....LIVE AND LIVE...AND SOAK UP EVERY MOMENT OF LIFE YOU CAN. !!
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown