Welcome new friend,we all understand your frustration. It is such a mysterious disease, one that can hardly be defined in certain parameters because it changes characteristics (it seems everyday) so often.
You have found a wonderful place to be; everyone here is wonderful to share their experiences, their wisdom...and they're are so so many who know so much more about this disease and they will be happy to answer any questions; or if you need some new ideas - I have found this to be such a healing place to be. When I'm too tired to explain this disease to "one more person"; and I feel like I just want to scream, I come here. You will find new friends here.
Stay plugged in, stay hopeful - it is so very important. Be encouraged that you are not alone with this disease - we're here for you; whenever you need to scream, cry, vent....and we really like it when we can even laugh out loud sometimes....so again, welcome. We're so glad that you're here.
Our "mom" and Moderator, Saysusie will be by to introduce herself to you. You will instantly fall in love with her. She is a walking encyclopedia of knowledge and has an endless supply of love and encouragement. So let the love in....take of your shoes and stay for awhile....stay a long while - welcome to your new family of sisters and brothers !!
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown