I wish I could reach out through this screen and give you a great big "mommy" hug. You have been through so much loss; and that all by itself can be too much to bear at times.
Lupus is not easy to live with; and as much as we all hate taking our medicine - my new friend, the best thing you can do for you right now, is to reach out and let those close to you nurture and encourage you. There are enough women here, just in this chat room - that you will have a "mom" everyday you plug in here. There are daughters who have lost their mothers, there are mothers who have lost their precious daughters. Our awesome and wonderful moderator, SaySusie - lost her precious daughter. There are women who have lost sisters, men who have lost mothers; and the list goes on. There are so many people here who are willing to help you through this. You are not alone, my friend, you will never be alone.
Let the fears you have become questions to ask your doctors, let your fingers scream out your frustrations on the keyboard....we all do it from time to time!!
Let those of us who have walked this road in front of you, be the ones who can help steer you clear of the pot-holes and road-traps (there are many; and most of us - or I should say, some of us have learned from our stubborn ways). Speaking from my own very bad experience, NEVER -NEVER suddenly stop medications without talking to your doctor first. To suddenly stop prednisone is very dangerous !!! Please understand that.
Hang in there dear friend, and hold-on we're all here to help you through this one day at a time. And sometimes, it's an hour at a time. So let the tears fall, and your hopes rise....and let the love here soak deep into your heart. We're here to help all we can.
Our administrator and moderator (SaySusie and St.James) will drop in soon to introduce themselves to you. So stick around, you have warm welcoming family right here to help you through. We're not fair weather friends around here - in sunshine and shade - these are the finest people you'll meet anywhere.
So, welcome Valawynn. Kick off you shoes, get comfortable and be prepared to learn alot, to be loved alot, to laugh alot, and yes, we even cry alot (I do, I'm a crybaby at heart).
Stay close and let us know how you are doing. Ask lots of questions, there are so many people here who would love to help.
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown