I agree with what Marycaine had to say. I will share with you, that I did the same thing early last summer; because I was feeling GREAT. So I slowly tapered off.
I did great for a couple of months, but as Marycain mentioned, these drugs stay in your body for a while, especially prednisone; and that is precisely why you still feel great right away. I do want to caution you friend, changing your dosage and frequency is dangerous. I know, I've been there. Once you're off and then you wait awhile to tell your m.d.,
and when symptoms start coming back...they don't come back like before, they come back with a vengence.
I wish with all my heart that we didn't have to take so many meds; I'm a chemical free "dreamer", and having been too close to the edge; has made me realize that lupus and meds are not to messed with, unless your working with your doctor. In my case, when I went off of the prednisone and Cellcept; now I'm having to take double the dose for it to do what it did before.
I don't want to rain on your parade, solesinger. But this is not something to mess with if you don't have the pharmaceutical background to understand how all this STUFF works. I wish now that I had never gone off of it; but I suppose it's nature. We feel better so we think, we don't need this. As my ER physician said; "it's the drugs that were helping your body, that's what made you feel better". PREDNISONE IS NOTHING TO MESS AROUND WITH. While it is a life-saving drug, all the doctors, and phamacists will tell you, NEVER SUDDENLY STOP THIS MEDICATION.
I also take Cellcept 3 grams a day, my doctor has said the same thing to me of that med. Cellcept is an oral chemotherapy med - originally used for transplant patients. It too takes time to build up in your system.
So, after my ER visit and several thousand dollars later I learned a very important lesson. I agree with earlier post, you need to be monitored by a rheumatologist; and make sure they do all the tests necessary to get the correct diagnosis. These meds are so complicated in their structure and how they work; phamacists have to constantly research them!
I didn't want to rain on the parade, but I felt a responsibility to share with you my experience. I did exactly what you did...and I hope someone else doesn't have to go through that. It has now taken me twice as long to get to where I was before.
I hope things continue to go well for you!!
p.s. I heard your music, what a beautiful voice you have!! Never stop singing!! You have a god-given talent and I hope you continue to sing, and sing, and sing some more !! Love to you - Browneyedgirl
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly." - unknown