I'm sick of this stupid flare!!
HI everyone! Basically I'm 24 and I feel like I'm 80. I'm on Prednisone and Plaquenil but I have been in a terrible flare since I had knee surgery a month ago. Now my kidney function's back down to 50% w/extreme amounts of protein and I'm at my wits end on how to deal with all this. My D-dimer test is back up to 8,000 and I'm having trouble clotting again-it had gotten down to at least 4,000 which was good because it had been greater than 10,000 (the computer only reads to 10,000). It has been a difficult few months since diagnosis even though I had been sick for a year before that. I had to drop out of my Doctorate program and move back in with my parents. I can't drive because that uses up what little energy I have. I know this is a little bit like a rant on my part but sometimes I just feel like I need to scream out! I had 2 semi-good months (the best i had in over a year) before the knee surgery so basically i'm back to square one now. I have been getting regular IVIG treatments for the last 5 months that had been helping. So Tuesday I'm starting at home infusions of Vivaglobin once a week that they are hoping will help with everything. I just feel soooo discouraged and I keep wondering when is the next good day going to come? Not to mention I have another chronic illness I have been dealing with my entire life-so life has always been a struggle but this past year I have been in and out of the hospital 8 times. I nearly died in February during my 2 week hospital stay. At this point I don't know what to do next! I just miss my friends and having a life so bad! That doesn't mean that I just sit around at home-I do go out but I can't ever make it for too long. They don't really understand that I can't will myself to feel better and have more energy--but wouldn't it be great if we all could! I apologize for this being so long and I appreciate anything y'all have to offer!
"Success is not measured by what a man accomplishes, but by the courage with which he has maintained the struggle against overwhelming odds." -- Charles Lindbergh