Welcome to our family! :BIG: Yes, it is important to have a doctor who can explain to you what the illness is, what exactly is happening to your body and why, what symptoms to watch for, etc.. I musta been lucky to find the doctors I have now. Both my rheumatologist and nephrologist take their time to explain what I should expect with the lupus diagnosis. Most doctors probably spend less than 5 minutes with the patient each visit. But my doctors take their time to answer all my questions and concerns. They even take their time to go over the test results, what each number and figure means. Also, for each blood test I have, my nephrologist personally takes his time to call me and explain how my bloodwork went.
Hope you'll find a doctor who is more caring and sympathetic. Its scary not knowing... So, I'm glad you joined us here. I've learned so much about lupus from everyone.
Welcome again. Feel free to ask questions, vent out your feelings, or just want to talk. You're not alone...
"I've learned that when bad times come, you can let them make you bitter or use them to make you better."