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Thread: Pregnancy and Lupus

  1. #11
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    Hello butterfly,

    I just found out I was pregnant a week ago. My rheumatologist took me off the plaquinil right away and kept me on the Imuran I started a few months ago. I'm still taking prednisone, too.

    Question: Has anyone quit plaquinil cold turkey and had any side effects? I was taking 200 mg/day. I'm pretty nausious already (started at 5 weeks) and didn't start feeling sick this early during my first 2 pregnancies. I was wondering if maybe the plaquinil is attributing to it (I hope!)?

    Hope that you are able to get pregnant soon Butterfly. There is nothing like feeling life growing inside of you.

    Angie

  2. #12
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    Thanks Angie! I keep my hopes up! I know it will be a while before we will be able to think about trying but I keep praying. We've decided that our first child will be adopted. But I still pray to one day carry a child and feel that life growing inside of me as you so well put it. Best of luck through your pregnancy!
    As for the plaquinel causing you problems with nausea I'm not too sure on that. I hope someone can give you some advice.
    ~ Butterfly
    Diagnosed in 1990 at age 11.
    Trust in the Lord with all of your heart!

  3. #13
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    I've been on Plaquenil for 3 years. It did make me very nauseous at first, but after a few weeks it went away. I just found out Saturday that I am pregnant and my rheumie is keeping me on Plaquenil. Hope this helps.
    I was diagnosed with lupus at the age of 14. I am now 29.

  4. #14
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    I have had Lupus for 20 years now and am 40 years old. I have 2 children. My first I didn't have the Lupus, but right after I had him I was diagnosed with Lupus. I then 3 years later got pregnant again with my daughter while having Lupus. I was pretty much in remission, but was a high risk pregnancy. My doctor told me all the grim stories about how Lupus patients that are pregnant miscarry and how lupus can flare. He even suggested abortion. NOT!!! The last 3 months of my pregnancy I was flat on my back in the hospital be monitored by the doctor. I was so depressed and bored I checked myself out twice, one time for Christmas, which was a ver bad idea, cause I got real sick and was taken back to teh hospital by ambulance. The doctor wanted to take the baby as soon as possible so I had 3 amnio's to make sure her lungs were developed enough to be delivered. When it was time they induced labor and she was delivered, but not without complications. My blood pressure rose so high that I blacked out and wasn't able to see her being delivered. She was a healthy baby girl 6 weeks premature, but doing great. She didn't even have to ne in the intensive care unit that they had me tour and prepare for. So there is some good and bad in being pregnant with Lupus. Just talk with your doctor and follow his directions. To the letter no matter what, cause he knows and will help you. Good Luck!!!!

  5. #15
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    Default Lupus and Pregnancy

    I have some advice -- it's to pay very careful attention to your body! I had my first child pre-lupus. That was a piece of cake. Developed lupus afterward. 3 years later, I got pregnant with child 2. That will be the last one! Pregnancy was complicated from the beginning from the standpoint that my body was trying to kill my placenta. I had a stage III placenta (i.e., old looking) about half way through the pregnancy. I had NSTs twice a week at the doctor's office, US at least once a week, and was followed by my ob/gyn, rheumatologist, and a maternal/fetal med specialist. End result? Delivery at 35 weeks, healthy but tiny baby boy. He was small for gestational age due to the growth retardation from the bad placenta. But he's fine now -- 16 months old and completely normal.

    I kept after my ob/gyn to follow him via US early on because I was worried that the lupus would hurt him. She was skeptical at first b/c I wasn't exhibiting other lupus sx then. Well, I was right in the end. We were able to keep a very close eye on things.

    I did have bed rest the last 2 weeks too -- very hard but worth it.

    Good luck -- post if you have any additional questions. I would definitely recommend a maternal-fetal specialist in addition to your regular rheuma and ob/gyn.

    LDG

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