I know how you feel
I walked aound for a full year beleiving I had Lyme disease. The words were , This looks like Lymes. Well at the time I thought. I finnaly have a name for this monster after being sick for so long. I was kind of releived, yet doctors tend to run from lyme patients, so got the run around for a while , found a rheumatologist recomended by a neurologist , who happens to be a very good freind, he said , nope , this isnt lymes and the rash isnt a pre cancer as you were told, this is an auto immune disease, your RA factor is 226, a normal persons is 20! yet your sed rate is normal which puzzled him greatly, he said he had only ever had one other patient like that . He said it looks like I had DLE overlapping RA, even thou the tests for lupus were a no, he said we feel you are on the threashold of lupus. I think a lot of us understand your frustration , doctors are only human , not god like creatures ( they probably make a bit too much money) and prone to make mistakes like other mortals . just like everything else , there are good and bad, the good ones will really try for you. These diseases are very puzzeling even to them. My new doctor feels there may be something in the environment , possibly because he said he has seen a dramatic increase in these diseases . I pick on the doctors a bit kind of a comic releif, told them , this is family practice, you just keep on practicing , and maybe someday you'll get it right. and if you get it wrong, do I get my money back?, guess its better than yelling which I feel like doing sometimes.
Would love to hear from others like me