I've had Lupus for about 5 years (that I know of). I just recently have become sensitive to the sun. I have a red spot about the size of a quarter on my face - the more sun I get, the angrier it looks. Also, I am starting to feel yucky when I'm in the sun for more than an hour. I cover my body entirely if I'm going to be outside for more than a few minutes. I am a very outdoorsy person, so this reaction to the sun is not 'my cup of tea'.
I want to know ;
- is being in the shade, but outdoors is ok (I feel ok if I do it) ?
- in the fall/winter/spring, when the sun isn't as strong, will I be able to be outdoors more?
- can I get by with rationing myself to an hour a day in the sun? I seem to feel ok if I stick to this restriction, but I need to know if I'm pushing it by doing this?