Confused?? Kind of long, sorry...
:? Hi Everyone,
I am new here and I want to start off by saying thank you for all the knowledge I have read here. I was diagnosed with Lupus 4 years ago but think I have had it for years. I really don't know what is a flare up or not?? I am always guessing because when I was diagnosed I had been dealing with severe inflamation for so long I had stomach surgery due to too much Naporsyn, now I am unable to take anti-inflammatory's. I have had alot of what was discussed on this bulletin and am glad I am not going insane as these doctors have made me feel. Even when I tell them I have been diagnosed they say "oh, that would not be Lupus" and then I read this bulletin and all of what has been going on with me is, in fact, Lupus. What is wrong with these doctors?? I don't have a doctor right now since I moved to VA, but think I need to get one. I have had some extremely painful flare ups and maybe it is time to see one. Any suggestions for Fredericksburg, VA?
Thanks for letting me vent....
Seems like a long journey to get diagnosed with this disease and even when you do, as you have it gets denied. One poster said before "what's up are all the doc's nuts"? Well may be not all but lots, I think. You really need to find yourself one soon. I can't help you with that as I live in Canada and our process is very different than there in U.S.A. We have a real shortage in this country of doctors in general but especially for specialists. We can wait up to a year and a half or two for an appointment and then it is usually only for a consult and not on-going treatment. There is something to be said user fees instead of socialized medicine as at least you chave choice and speed. We have no option but to wait. I am in a real flare and I can not get in to see my rhuemmy until the end of October ( I only get to see her every 6 months to a year) so in between I see my general practictioner.
I also cannot take anti-inflammatory meds and that makes managing the symptoms even more difficult. I have found that plaquenil helps with lots of my symptoms though but not all. Are you on any meds presently?
Thank you for your response, wow waiting that long must be hard when you have an extreme flare, sorry to hear about that. I have been just dealing with it too, but they are coming more frequent and more extreme now.
I am on muscle relaxers and Vicodin of which I try not to take, they make me too drowsey to work. But I haven't been to a Doc that specializes in Lupus in 4 years so they might give me something different when I do go.
My husband is very good at trying to make me comfortable.