You are truly not doing yourself any good insisting that you have Lupus and stressing out because no one will tell you that it is Lupus. While Lupus is a real possibility, as I mentioned before, it is just as possible that you may be suffering from another auto-immune disorder or from overlapping disorders. What you should be fighting for, at this point, is treatment of your symptoms (regardless of the underlying condition) so that you can have some relief from the pain, etc. You are adding unnecessary stress by insisting upon a diagnosis of Lupus. Stress, as you must know, it one of the deadliest symptoms of this disease because it can cause new and serious symptoms to appear (including damage to your internal organs) and stress can worsen the symptoms that you are already displaying.
Please, please, try to concentrate on treatment and not so much on diagnosis. There are some of us who NEVER receive a diagnosis, but our symptoms are being treated. This happens more often than you could imagine and over emphasizing the need for a definitive diagnosis is likely to do you more harm than good. Some are diagnosed with Mixed Connective Tissue Disease (where the disease features signs and symptoms of a combination of disorders For this reason, mixed connective tissue disease is sometimes referred to as an overlap disease. In mixed connective tissue disease, the symptoms of the separate diseases usually don't appear all at once. Instead, they tend to occur in sequence over a number of years, which can make diagnosis more complicated).
Some of us are diagnosed with undifferentiated connective disease (used to describe people who have symptoms and certain lab test results that look like a systemic autoimmune disorder or connective tissue disease. But they don't have enough of such characteristics to meet the diagnosis for a well-defined connective tissue disease, such as rheumatoid arthritis, lupus, or scleroderma. Thus, they seem to have another, similar disorder that doctors call undifferentiated connective tissue disease). So, there are many of us, as I mentioned earlier, who never receive a diagnosis. So, please stop doing yourself harm by insisting upon this particular disease and stressing because you have not been diagnosed with it!!!
I apologize for being abrupt, but it is important that you take care of yourself and not cause yourself any more harm. At the rate that you are going, I foresee that you will do just that!
Peace and Blessings
Last edited by Saysusie; 08-19-2014 at 10:52 AM.
Look For The Good and Praise It!