Welcome to our family. I am sorry to hear that you've suffered so much and for so long. I wish that I could say that yours is a story that we've not heard; but unfortunately, many of us have been through what you are going through. Also, like you, we can trace our symptoms back to our teenage years or before.
I do hope that, at your appointment, they decide to treat your symptoms irregardless of a definitive diagnosis. Many times, treatment is much more important than a diagnosis.
Please take a few moments to read through the "sticky" sections at the top of each forum. You will find valuable information in there as well as some excellent advice on how to deal with medications, symptoms, and side effects. I am glad that you joined us here as we are dedicated to helping you in any way that we can. Please let us know how your appointment goes and what treatments were prescribed. I wish you the very best.
Peace and Blessings
Look For The Good and Praise It!