Hello and welcome to our WHL family. Like many of us here, your symptoms go back many years and were surrounded by unanswered questions and a lack of a clear and concise diagnosis. Unfortunately, this is the nature of the disease and we simply cause ourselves unnecessary stress by looking for straightforward and definitive diagnoses. The diagnostic process can be quite lengthy and frustrating as it is a process of elimination.
One thing that is quite common for those of us with this disease is the fact that we must avoid the sun like the plague. Exposure can cause us to have serious flare-ups, can bring about new symptoms, aggravate current symptoms, and wreak havoc on our bodies. It is important that you protect yourself from UVA/UVB rays as much as possible. Never go out without sunscreen (broad spectrum - minimum 50 SPF), always wear clothing that protects all of your body, wear a hat and sunglasses. Even as such, limit the amount of time that you are in the sun. The after effects that you've described are quite common for those of us with Lupus...unfortunately.
How did your appointment with your doctor go? Please let us know what has been decided. I wish you the very best.
Peace and Blessings
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