Results 1 to 4 of 4

Thread: Time to Call Doctor? Go to Hospital?

  1. #1
    Join Date
    Jul 2014
    Posts
    6
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Time to Call Doctor? Go to Hospital?

    I need a little help making a decision and don't know where else to ask.

    I was diagnosed a little over four weeks ago. SLE. The diagnosis came from the 2nd rheumatologist I saw. The first was dismissive because of my negative ANA. The doctor that gave me the diagnosis started me on plaquenil and scheduled my next visit with her for this coming Friday (6 days from now.)

    Since the diagnosis, my symptoms have gotten steadily worse. My fever has rarely gone below 99.5 for two weeks (my pre-lupus temps were about 97.3). The brain fog is starting to scare me. I can't concentrate on anything and I am losing words half the time I try to speak. The joint pain, especially in my lower back, hands and feet, is terrible. By 1pm everyday, my "spoons" are long gone and I feel so weak I shuffle across the floor. Besides the malar rash, there's a new strange rash on my shoulder. Last night when I woke to use the bathroom, I was so lightheaded I went down on the floor. Not quite passing out but I couldn't stay upright.

    I called my rheumatologist 3 days ago and she started me on methyl prednisone (I have type 2 diabetes and she thought it would be better than regular prednisone.). It's not helping. The fever, in fact, continues to slowly climb. This morning was 99.8. Previous short courses of regular prednisone have helped but I've never been this bad before.

    I'm new to Lupus. I've read that I have to find "my normal" to know when to take action but I don't know what my normal is yet. It's Saturday here. I won't reach my doctor till Monday and by then it's just a few more days till my appointment. Do I call her again Monday? Do I go to the hospital?

    Any help appreciated.

    Deb

  2. #2
    Join Date
    Dec 2009
    Location
    Atlanta Area - Dacula and Boca Raton
    Posts
    1,814
    Blog Entries
    12
    Thanks
    379
    Thanked 402 Times in 325 Posts

    Default

    Get yourself a friend to take you to the doctor ovr the ER. You should see a doctor, you need help. Not phone help

  3. The Following User Says Thank You to Nonna For This Useful Post:

    Saysusie (07-30-2014)

  4. #3
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,721
    Blog Entries
    9
    Thanks
    1,578
    Thanked 919 Times in 582 Posts

    Default

    Did you go to the doctor or ER? If so, what was he prognosis and what treatment was prescribed? Most importantly, how are you doing?

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  5. #4
    Join Date
    Jan 2014
    Posts
    158
    Blog Entries
    1
    Thanks
    25
    Thanked 42 Times in 35 Posts

    Default

    I would definitely go to the ER. Please keep us informed.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •